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Hello, My BMI has always hovered round the 17 mark my whole life. After diagnosis I went on steroids and fortisips to gain weight and I managed to gain about 5 kilos but since stopping both of those I just slowly lose it. I don’t seem to be able to maintain my weight without regular fortisips...

Ahh that’s so scary what blood test looks at the kidneys?? I get monthly blood tests for: FBC, LFT and U+E. Would that pick up kidney problems?

Just to add a different perspective - Crohn’s absolutely can cause constipation, especially if you had Crohn’s in your small bowel. The small bowel only has a small diameter and if it becomes inflamed it can prevent the passage of food. There are literally dozens and dozens of posts on this...

I would recommend reading NICE guidelines for Crohn’s treatment as that is the protocol here.

I think it can depend but there is a risk your new doctor may take you off remicade if you are deemed in remission.

Hello, I started 25mg of aza in April 2016. Took that for around 3 months and then upped to 50mg. I took that until March 2017 and then upped again to 75mg. From there my WBC started slowly dropping with each monthly blood test. By September 2017 it had dropped just slightly below normal so I...

No problem. When I felt scared after my diagnosis this post really helped me, perhaps it can help you too: http://www.crohnsforum.com/showthread.php?t=19417

There aren't really that many long-term maintenance oral medications for Crohn's. I suspect the many tablets you hear of may relate to other things as well as Crohn's and could include short-term steroids, pain medication, supplements - vitamins and minerals, and medication that you can take for...

Also I had surgery in 2011 and it was the best thing ever afterwards. Afterwards I spent months travelling Central and South America including the Amazon rainforest

Medication will have no effect on what you can or cannot eat. Only the disease has that affect. I can eat anything. The drugs you are referring to that make you gain weight and give you a round face and mood changes etc are steroids. They are prescribed when someone with an inflammatory disease...

I’m not entirely sure what meds you have read about that cause severe problems like diahorrea or something else that would seriously affect your life. Most people find medications enable them to live their life as normal. I’d say the symptoms you are describing are more likely to be caused by...

When I have obstructions in the place where my appendix was I don’t get any pain there, instead I get Labour like pains, waves of agonising cramps in the centre of my abdomen above my belly button just below my ribs. Absolutely agonising. Pre diagnosis I thought I was dying.

Bile acid sequestrants could help ileal Crohn’s https://www.sciencedaily.com/releases/2017/12/171219133450.htm

I have been on it over a year and have had no side-effects so far. You don’t need to change your eating when on it. Hopefully it will put you to remission which should enable you to eat whatever you want. I have asthma too. I make sure I get the flu jab and try and stay away from people who are...

1 emergency open resection following a perforation

sorry to hear what you have been going through. Why do you only have 2 years to live? There are several drugs out there that could help you and get the inflammation under control, after which they could operate.

As far as I’m aware the only eye condition related to Crohn’s is uveitis https://www.nhs.uk/conditions/uveitis/ I would also get a fecal calproctectin

If you get severe pain you must go to A&E. So far you have had lots of tests relating to your large bowel but NONE have looked at your small bowel.

MLP - she has had a colonoscopy which was negative. Yes a flex sigmoidoscopy is exactly the same procedure as a colonoscopy except it doesn’t go as far through your bowel. So a colonoscopy is superior as it will look at everything a flex sigmoidoscopy looks at plus the rest of your colon and...

No problem! It’s good to be armed with knowledge so you don’t get dismissed. Just to advise as well your IBS nurse should be able to look on the system and see what number your fecal calproctectin resul was. If it is above 50 it’s abnormal and you can say to her that rules out IBS.