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Yes I think we obviously need large trials with big sample sizes. All I can recommend with this diet is if it's the only source of treatment, have regular monitoring and colonoscopies.

Hi Richard, I will try and get the full article when I am at work tomorrow. I personally think it is a bad sign if the children already had low fecal calproctectin levels, indicating their disease was mild/moderate, and still the diet did not heal any of their bowels. While one child achieved...

http://journals.lww.com/jpgn/Abstract/2017/09000/Lack_of_Mucosal_Healing_From_Modified_Specific.10.aspx

http://journals.lww.com/jpgn/Abstract/2017/09000/Lack_of_Mucosal_Healing_From_Modified_Specific.10.aspx

Hello, sorry to hear of your difficulties. Yes steroids are widely used for Crohn’s, I think you would struggle to find many patients here who have never been on steroids at some point. However, it’s not good to use them a lot and not good to use them long-term. They are usually used for a...

Yes I'm currently suffering from a horrible cold at the moment, trying not to cough too much so I don't go into full blown bronchitis. It is miserable. My advice, (which you may already be doing) is: Try to limit alcohol Be vigilent about washing hands - perhaps even carry around a small...

Redhill results expected early: https://www.healio.com/gastroenterology/inflammatory-bowel-disease/news/online/%7B6a9df261-0e7c-41b3-ab92-6983200e1adc%7D/crohns-map-antibiotic-trial-results-expected-early

Hi I am sorry to hear about your troubles. There are people on this forum who have had results in the thousands, so yes your result is high but it could be a lot higher. It is too high to be explained by IBS. If this has been going on for years I would say you could possibly be diagnosed with...

Hi all, the following conversation was exchanged with Crohns Colitis UK and I am wondering people's thoughts: Me: CCUK: Me: CCUK:

Hi, I think it’s normal - can you use baby wipes instead of toilet paper?

They say there is a 10% chance of children inheriting IBD from a parent. I wonder if that might be higher though as so many people on the forum has a parent with IBD, myself included. A sibling is 30 times more likely to get IBD if one of their siblings has it compared to the general population...

A high calproctectin indicates that there is inflammation in your bowels. This could be caused by IBD such as Crohns or ulcerative colitis. However, there could be other causes such as an infection. It would be good to know what number was the calproctectin. It sounds like you have been having...

I would probably suggest shandies, or a couple of spirit and mixer drinks. Avoid dark liquid alcohols such as whiskies. Expect to feel like crap the next day and perhaps next 2 days depending how much you drink. I would try and not drink more than recommended guidelines to avoid feeling awful...

Just to advise as well, you don't want to have too many CT scans due to the radiation risk. MREs would be better (MRI with contrast) and may also reveal different findings. I would also suggest a fecal calproctectin and perhaps another pill cam / upper and lower scope. Your gastro doesn't sound...

I am on azathioprine and get blood tested monthly - FBC, LFT, U+E. Does anyone know if inflammation testing such as CRP and ESR would be covered in these or would the doctor have to specifically request these to be covered.

I may be wrong but I think the reason fecal calproctectin tests are less accurate for testing inflammation in the small bowel compared to the large bowel is because the stool has to travel further down the GI tract and therefore inflammatory cells may be lost by the time it has been expelled. I...

Would you consider seeing a GI again? As well as monitoring your bowel for possible Crohns damage, we are at risk of bowel cancer after decades of Crohn's inflammation. Therefore it would be worthwhile checking in with a GI at least yearly

Yes me! My first symptom was I believe a partial bowel obstruction. I woke up in the middle of the night with the awful waves of pain above my belly button. It passed and I thought it was a one off but they kept coming back. No doctor would do any testing and eventually my bowel perforated

I definitely think you should get a colonoscopy. Yes it's 2 days of hell but then its done and you can find out what's wrong. Your symptoms are no way to live and the cause may be very treatable. As the CT scan identified inflammation in your ileum I would say it is paramount you get a...

I've been on azathioprine a year and 3 months. I'm in the UK so wouldn't be considered eligible for biologics.