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Crohn's Disease Forum

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  1. Keona

    MRE- do I need to drink gross stuff?

    yep- you do... but it isn't that bad. You will likely have to drink 4 large glasses of orange flavoured metamucil. This is to expand your intestines to get a good image. Ask them to make it really very cold and for a lid on the cup. The lid helps with the smell (which isnt that bad) and ask...
  2. Keona

    Feeling sick for a week if late for one meal?

    I am on the highest dose possible of proton-pump inhibitors and when I had my 24 hour Ph test done (intubated for 24 hours) I was told my stomach is STILL producing acid and there is something wrong with the motility of my esophagus. Unfortunately, the medication they give for this will...
  3. Keona

    Grieving.

    I'm stuck in the anger stage because my GI is stuck in denial. Amazing how they can say, "maybe you have some rare cancer" yet are reluctant to say that Crohn's is likely the cause (they are so afraid to give me any medication/treatment).
  4. Keona

    Surgery

    Thanks Dusty :D I think that is part of my delay in calling them. Every time I do call them they make me feel worse... about everything... and no real help given. Thanks Dusty... am happy with my new job. :)
  5. Keona

    I knew I was thick, but...

    It is funny you mention this because I was talking to someone a few weeks ago (she is an older senior) and she barely knows how to turn on her computer and she received a similar phone call. Not sure if they said they were Microsoft (I think they did) and they told her to turn on her computer...
  6. Keona

    If you have Crohn's, have your blood tests shown signs of it?

    All but one of my images came back as non-definitive crohn's (?!?!?!) .. my blood work all comes back normal except once .. all I was told was I had a vitamin deficiency so I voted that all came back normal. I was told that perhaps the stuff I had to drink didn't absorb into my bowels...
  7. Keona

    Update On Welsh-bird - Serious

    Thinking of you - still waiting for Brad to return my call .. here..this is to tide you over :P ummm...sorry its so LARGE but I figured you might actually like the life-like effect :)
  8. Keona

    Surgery

    Thanks you guys! No worries about not winning... hard to compete with a 7 time cancer survivor and someone who opened a school in Cambodia. Its all good...I learned throughout the process and felt a lot of encouragement :) As for the camping trips...interesting how one door closes and one...
  9. Keona

    Surgery

    well... I didn't get to go on the camping trip before the big outward bound one because I was sick. The outward bound one told me that I would be placed on a waiting list - which is okay. I was a little disappointed but that is okay - it will give me a year to get all the gear and get ready...
  10. Keona

    For those of you who use Facebook - there will be an online UC webinar/discussion.

    http://www.ccfc.ca/site/c.ajIRK4NLLhJ0E/b.7519169/k.C8D1/Webinar.htm?utm_campaign=webinar2011&utm_medium=social_media&utm_source=facebook-ccfc Cheers, Wendy
  11. Keona

    Surgery

    Thanks everyone :D The camping trip went well aside from a tornado warning and a severe thunderstorm. We were all (100 women and children) put into a large cabin (with 1 ... count'em ONE) bathroom I might add! and someone with bowel issues...!!! that was not the highlight of the trip but at...
  12. Keona

    Ameslouise in hospital

    that was hilarious about being famous. It really was a laugh out loud. I hope you are doing better ..sadly, I feel I can relate..lol... no more berries for you huh? ... Scary ? I am finding this disease very unpredictable. I learn a lot from everyone here. Note to self - no wheatberries...
  13. Keona

    Update On Welsh-bird - Serious

    I think we ought to as a group get in contact with the hottest guy on her favourite Rugby team and get him to go visit her in the hospital :D
  14. Keona

    Surgery

    still no word. The first MRI I heard the morning after. The second, I heard 4 months later (that they wanted to do a repeat MRI as the second was also abnormal.) 3rd one, I called the next morning I think for answers..or a day after. So far so good. I will eventually call if they don't...
  15. Keona

    U of U study: 'Hitchhiking' gene plays important role in Crohn's disease August 17th,

    http://www.ksl.com/?sid=16838344&nid=960
  16. Keona

    Surgery

    well, I didnt get a call this morning so that is good news, right? The radiologist told me that my GI would get the results that afternoon or today and I usually received a call the next morning, after they found abnormalities. I didnt hear anything...and my interview for Outward Bound is...
  17. Keona

    Surgery

    Hey Marisa.. thanks!!! I will finally know for sure if I had an abcess...haha.. the way all of you described it.. I could relate a lot. Ya, so once in for all I hope to have answers!! I have a camping trip to go on Monday - for a week and another one in September and a week portage/canoe trip...
  18. Keona

    Surgery

    I am okay now just had a bit of a headache and my throat, nose (anywhere the tube was) sort of hurts a bit. Felt like i had a sinus infection for awhile . Nose, sinus and throat and chest were sore - a lot better by about 7:00 pm though. I had the hiccups for quite awhile after the test..you...
  19. Keona

    Surgery

    ya, he was pretty buff.. even the nurse said so before I had met him .. and he is married.. its all pretty much wearing off .. mostly feels like I have a sinus infection and cramps in my stomach..throat hurts a little.. I dont know, if anyone ever reads this who has to have one done.. you make...
  20. Keona

    Surgery

    well, it wasn't as difficult as it was in my head. If you have ever had an NG tube before...then you are almost halfway there, essentially. The conditions they do it in is a lot scarier.. you are in an O.R type setting with an X-ray machine so they can see where to insert it. My doctor (aside...
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