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@Christi: What did your doctor say? Did he refer you to a rheumatologist?

@Archeogirl: Thank you so much for sharing! That sounds like a tough journey and I can relate to your attack-like symptoms. Mine have been quite similar in many aspects, I can also relate to this "robot"-like walking etc. I describe the pain that I have like a big truck parking on my knees and...

Mine were diagnosed in December, the pain decreased within two weeks, I would say (three fissures, I could not sleep without a small ice pack, it was super painful). For the next two (?) weeks it was still painful when I went to the toilet, now it still occurs occasionally and I still apply the...

I have osteopenia as well, but haven't been on pred for a very long time, but have had high doses iv in between. In my case, I would suppose, my body density is too low, as my symptoms have been untreated for 8 years, in addition, I always was a slim person and not eating that much, probably...

Thanks for bringing that up, I had the same thought a few days ago. If you have time now, look on pubmed.gov, I found different study results, but in general it should be helpful to decrease inflammation by its polyphenols. The thing is, it also contains a sort of caffeine, and I might have a...

Any recent scientific findings or personal experience? Any benefits? VSL#3, Mutaflor and all the other probiotics seem have a positive impact on the disease, don't they? My nutritionist is a lover of plain sour milk products and is of the opinion that it is essential. So, any data or experience...

Colette, have you tried Ensure, ModulenIBD, Elemental028, Fresubin, Peptamen or enteral feeds like that? At least they decrease the symptoms dramatically, they don't seem to be a long-term treatment for adults, that treats inflammation, but maybe it helps you to feel a bit more normal. I have...

I'm sorry to hear you are struggling, Colette. So, you have arthritis as well, don't you? In deed that is super tough. Of course, I have very bad times as well, but what helps me is to connect with people that are affected as well. And that's probably the only thing that does help as even my...

Anyone on Cortiment or Uceris? I'm in a Crohn's flare-up and my left colon seems to be inflamed (so painful when food goes through, still painful if no food is passing though), as well as my terminal ileum again. From tomorrow on I will be trying Budesonide MMX which I was prescribed today...

Thank you so much for your support and advice! I try to sum up what has happened in the past few days: I felt super nauseous, had no appetite at all, I didn't really have these symptoms before and I have had gastritis before. Well, as my doctors were on holidays, I tried everything that I had at...

Thank you guys so much for sharing! :-) It feels so good to know that there are many of us out there dealing with Crohn's AND arthritis. So mine is supposed to be enteropathic arthritis and flares quite badly when I'm in a Crohn's flare (as I am now), but the symptoms differ. In a Crohn's...

Thank you fuzzy butterfly and Catherine. The gastritis is chronic, according to the histology results.

Thank you Tubes, you probably hit the nail right on the head. I wished there was some sort of forecast but there will never be one. It's just the way it is. DougUte, unfortunately my disease was chronically active before treatment, now this is a huge improvement for my condition. The current...

Just curious, since it looks as I'm having a flare-up again. I couldn't sleep last night due to TI pain (ice pack for TI, heating pad for my stomach with gastritis works best then; could decrease the diarrhoea with going on exclusive elemental diet again) and I wondered if it is a "normal"...

I've been trying having smaller meals more frequently but it didn't help. So I'm back on elemental now, thank you ronrush!

Hope you get back on track soon! I'm wondering if you can determine what eventually does the trick when you start several changes at a time? I tried oregano oil in olive oil quite a while ago, first I thought it would help me, then I felt burning pain in my tummy, it took a few weeks until I...

Just came across this thread, thank you so much for the summary and research! That looks very promising what is on the way! :-)

https://www.ncbi.nlm.nih.gov/pubmed/25490986 Vitamin D is considered as a possible therapy in this article. https://www.ncbi.nlm.nih.gov/pubmed/26952579 The correlation between disease activity/severity of disease and vitamin d status has been showed already. Any personal experience on...

https://www.ncbi.nlm.nih.gov/pubmed/26473333 Seems to be helpful for sustaining remission.

Has your arthritis developed simultaneously to your Crohn's? Mine has been diagnosed just two months after I've been diagnosed with Crohn's but my symptoms of Crohn's started 8 years before the diagnosis and I was having reoccurring joint problems but did not pay enough attention to it. I...