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I am so sorry this disease has brought on other issues nonroush for you as with me. Sending you healing energy.

And GI Jane thanks so much for responding. So glad that your bloodwork came back good. What's making you go back on the Jordin Rubin diet?

Thank you Guerrero and momofzach. Guerrero it may take awhile longer for Entyvio to kick in with your elevated Calprotectin to go down. Mine did go down after awhile but we are all different but hope yours goes down too. Seeing liver specialist on my birthday of all days and will keep you...

Besides being really sick from Crohn's and all its complications I have been denied SSI. Never received the denial letter in the mail and when I called my case manager to send her my latest bloodworm,,,anemia etc.she never said anything to me and I was already denied and she never told me!!! So...

Hi everyone I too am on Entyvio for1 year and 10 months with great success. In the beginning it was a long haul and it wasn't working after the allotted dosing but doctor and I figured I should just give it one more time and it worked! Now Im experiencing high liver elevations for quite a few...

Thank you. Wishing everyone luck with this drug!!! Four weeks doing the trick for now but now with being forced onto Obamacare since self pay private insurance and being cut off in Ny don't know how I'm going to get it anymore since my GI doesn't accept and Marketplace doesn't seem to cover...

Marketplace Insurance I have been on self pay private insurance and now being kicked off as of 2017 in NY and only can get Obamacare which I'm being pushed into which will cost me more then my private insurance. I'm finding it a nightmare since I have a complicated case I need many doctors and...

Hi Sorry for everyone dealing with this disease and all the difficulties that go along with it. I need your HELP! I'm in New York and a private individual pay health insurance person until the end of the year. I am being dropped by my insurance and being forced into the marketplace insurance or...

Hi mongrl, I too have been having ballooning done every 4-6 weeks because of having an iliocolic resection too.I can I couldn't eat since my opening was so small and drank and still do drink Peptamen which is costing me a fortune. I eat a little after the ballooning but nothing exciting and...

i so wish everyone luck and good wishes on this drug. I've been on Entyvio since December on the regular regimen but since i start failing around the 6th week on it the doctor wants me to take it every 4 weeks. Is it safe to do? Anyone else on that schedule with good results and not many side...

Called those numbers and couldn't talk to anyone about medical advice since everyone knowledgeable went home by 6pm eastern time!! Want to know what happens if you miss the 8th week dose since my insurance and docs office messed up and not getting my infusion in time if at all???? I called the...

I am so sorry what you are going through I too am experiencing a terrible time and scared out of my wits. First time I don't know what's going on with me and losing hope. I too think if I have a few hours that I can go to a movie then I can't get SSD I may have problems getting it anyways but...

Can't thank you all enough for the info. Just don't know if my mom and I have the strength and fortitude to fight so hard since it's been an awful battle for the last 25 years and we've always been so hopeful until now. We never gave up and fought tooth and nail for everything but now we are...

Sorry I haven't checked email lately but so appreciate your replies.....you have no idea how much! Well actually you do since you're unfortunately the only ones who get it whereby I'm so sorry that we all have to be here. Ummm how do I get in touch with some of you privately? I have brain fog...

I am so very happy for those who were able to get SSD and so sad for those having difficulties. Jennifer or someone please help me! I'm beside myself and need help. It has not been easy finding a good lawyer here in NY and was wondering PLEASE someone tell me what the doctor said to get them...

Where are you located?

Thanks Mandy!

I'm so sorry for all those who are having difficulty getting SSDI with this dreaded disease. What do you do if one's self employed without making any money for the last 41/2years. Didn't want to apply because I kept thinking I won't need it and I'd be giving up my dream but realize I'm too sick...

I've had 2 doses of Entyvio which is my last hope and now I am having difficulty getting my new health insurance straightened out even though I paid it the beginning of this month but because I upgraded and it's a new year they didn't process it yet but yet I have insurance whereby they may...

I don't know about eating anything and everything. After my surgery I still couldn't eat anything and everything and after eating certain foods for awhile they bothered me. I ate organic and very healthy and here I am 21/2 years later drinking PePtamen 1.5 for 4 months now. So it's a crapshoot...