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Dee how are you doing?

Thanks so much Spooky1. I'm in the United States and I guess things are run differently then the UK. Healthcare is changing here an it doesn't seem for the better. Everyone seems overwhelmed and things are changing so no one seems to know what they are doing anymore. Very sad. There's nothing...

I'm so sorryLoki. Can you try Peptamen 1.5? It's geared for Crohn's patients. Do you have Crohn's or Colitis?

Yup exactly Spooky1

I looked up Liquid Hope but couldn't find any information about it being good for Crohn's patients. The ingredients look very healthy and organic but some of the ingredients like garbanzo beans, broccoli etc would destroy my intestines. I would live in the bathroom rather then going frequently...

Hi Spooky1 Thanks so much for responding. I've had 2 doses of Entyvio which is my last hope with this disease and funny you asked what meds because now I am having difficulty getting my new health insurance straightened out even though I paid it the beginning of this month but because I upgraded...

I'm a young adult with Crohns for 25 years and have run out of options. Haven't eaten for her 3 months and have been on Peptamen 1.5 but now that seems to bother me and getting bad pain again so doctor suggesting TPN. I just had my second dose of Entyvio which is my last hope but want to know...

Are you able to eat anything with the ulcers?

Hi All I am so sorry and scared in reading so many of your posts and you are all my heroes and heroines. I'm the mom of it'smebabs who is an adult and she is my only child (and family) dealing with Crohn's almost all her life. She's tried and been on everything except the biologics because she...

MLP Yes it was a new GI doctor that prescribed Doxycyline. My insurance is changing and old GI isn't on plan so tried this new doc.On Pentasa which seemed to stop working and waiting like 6 weeks for my insurance to cover Entyvio. Allergic to all other drugs and can't even take prednisone due to...

Thanks so much for your reply! I'm so confused. Doctor also gave me Doxyclycline since I'm allergic to Cipro and Flagyl. But now reading bad things about it. Will it make the Crohn's worse. I'm running out of options and so scared.

is Peptamen only for children or can it be used for adults who can't eat during a flare. Thanks so much in advance! Please help. At wits end. Babs

Thanks so much for your response.How long have you been on it and have you experienced any side effects so far? Are you able to live a fairly normal life on it? Do you have Crohn's or UC? Sorry for all the questions but having Crohn's is so frustrating,nerve racking, and destroying my life...

Oh no! I'm really sorry. This disease and all the meds are really scary!!! I don't know what to do anymore. Surgery was going to put me in remission along time (Not!!!) since I did whatever meds I could take to no avail and also developed serious side effects that I have to live with now. Now...

So sorry about your allergic reaction. Can I ask what happened and how was it taken care of? Did they put you on something else? I so hope that you are doing ok now. xoxo

Thank you so much for your replies. I guess besides my other issues I'm really scared of the side effects especially the neurological one that can effect your brain permanently. Also has anyone having or had success with this drug?

Hi I've had Crohn's for at least 25 years so almost my whole life. Have been on everything except the biologics since I have a precursor to Cutaneous T Cell Lymphoma and MGUS (can turn into Multiple mMyeloma... bone cancer). Because of not responding to any drugs and having iliocolic resection 2...

The GI office lost or misplaced it?????