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Hi I read your post of 2013, I wonder how are u doing, I’m on tpn for ever only 3 feet of small bowel left

Hi it’s been a longgg time since you last post but I’m curious of how long where you on tpn ? I will be on it for at least one year

Oh thanks I’ll look into it, do you know if these can be covered by insurance?

I just bought a can of neonate to try it out, it say for pediatric use but I guess as a supplement I can try it ...

They want to start stelara and Gattex, they think my three feet of gut can absorbs more if I use the Gattex , but I read about all the side effects and I’m scared to use it .. this is becoming unbearable all the massive output of my stoma, the tpn , I wake up all times to pee, and drenched in...

Hi are u using Gattex ? I have sbs since my last surgery 1month ago and dr wants to start Gattex , I’m very scared of side effects ( cancer , heart failure Ect)

I know I ask and he said there was no way to know beforehand in the Mri I did 5 months prior didn’t say how long it was ..., I’ve been eating that’s not the problem is that all comes out mostly undigested because is so short so I’m like consistently hungry,

I was diagnosed 25 years ago in 1993, I got an acute pain while I was 3 months pregnant, at first they thought it was apendicitis ...was doing ok with just asacol with just light diahrrea for 17 yrs till I got a second perforation in 2011 when I got a temporary ileostomy ...I was on asacol ...

Not so good , I’m in tpn 14 hours every day , prior to surgery I never imagine I was going to end up with just three Ft if small intestine I’m still in shock I’ll have stayed with my inflamed fiztulixed guts if I knew I was going to be like this

I ended up with short bowel after my third resection

Hi there are you still on tpn ? I’m new to this I’m scared

Hi how are you doing with your tpn ? I’m new to this I have sbs please help !!!

Hi I’m replying to an old post, I’m on tpn for sbs because of last resection left me with 3 ft I feel I’m all alone in this