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Hi Peter, I remember you from one of your previous posts about this. I am so glad to hear that you finally got heard and that they have gone in and removed such nasty scar tissue. No wonder you were in such pain. With hindsight it is crazy, they left such dense adhesions that were visualised...

Hi Chris, sorry to hear about the tough time you are having. My job is under threat for different reasons (restructuring) and it really sucks. There is a website www.equalityhumanrights.com which has tons of info and I think an advice line too. If you do qualify as absentminded has said, then...

Sounds like a good plan to see your fave doc. Worth their weight in gold. Haha that made me laugh about him knowing your body better than anyone ;). You must make him blush! Or maybe your husband! Let us know how it goes with him. I hope you are able to go to visit your daughter, its always...

Oh no! Just as things go well with one department... :ywow: I'm sorry he didn't treat you well. It doesn't take much to be kind and to listen. I agree it would have been simpler & quicker to give you the script. :yrolleyes: Alendronic has some pretty unusual side effects, which as I...

How'd it go with the endocrinologist?

Foz, it is demoralising when things don't improve for such a long time. :hug: I am a great believer that you are the expert on your body. Especially with long term illness, the experience you gain overtime is often reliable in sensing what is up. It isn't fair what is happening, but you have...

My lesions / resection / scar tissue are / have been in the same area as where your daughter has her troubles. I stick to low fiber and little and often also. On top of that I have discovered I have a problem with pasta (which is an allowed food). At first I thought it was about the bulk of...

Hi Lacey, sorry to hear of your dx. Hopefully someone will be along soon with some advice. In relation to your question above I personally would hope not. If you feel that you have common ground with the folks here, then I would stay. This forum is open to those with 'other IBD'. I have...

I have a friend working in healthcare who has crohns and who is on immunosupressants. I'm sure there are others in her position. At present this has not caused her specific issues. Like you say there are plenty of adjustments you can make within the particular post you have without adjusting the...

You have my sympathies...I've had some new consultants lately and even when they are great its not the same. With the old ones it felt like we'd survived all the life changing surgeries together, and a lot of trust is built up in that. With the best will in the world meeting you 20 chapters into...

Yeah I think it can be a diagnosis of exclusion, which unfortunately means its occasionally applied a bit thoughtlessly. I'm sorry to hear that, it's no fun going in an emergency, but I'm glad they got to the bottom of it in the end. Not sure if you meant me or foz when you said 'you'. In my...

There are so many different sources of pain in diseases like ours. I guess I've just learnt to differentiate through having what I thought was the trouble always confirmed in theatre, but I don't always know on a day to day basis. What you are saying makes sense though, as although some studies...

Ugh it really is awful when they go badly. I think them being sensible and responsive to your pain etc are two of the most important things and its sounds like you'd get that with him, and he knows your history properly, which is much better than a stranger scanning your notes 5 mins before you...

It's so frustrating when you have to make sure all the clinicians talk to one another and know what is going on. I find that once things got complicated it was only ever me that was up-to-date on everything. Amazing there haven't been more muck ups really. Do you find that? Did you have...

Wow cleuger, my bowel surgery was not as extensive, but there was no way I could have mopped floors on gone to the fair! Bless you, did you go on rides?!! :ywow: Its great that you are active and you are keen, but your body tells you if its not happy and it sounds like thats exactly what is...

Oops bad habit :blush:. I was referring to painkillers. Hmm not sure as it varies according to the organ it comes from, but I guess broadly speaking it's quite intense, sharp sometimes smarting and with a noticeable start and end point. But thats just me, I think we all experience pain...

Haha. I don't blame you for saying that. Ooh Tim Horton's. I got addicted to their cinamon buns! It's lucky we don't know how long the journey from A to B is going to be sometimes, but you got there on this one and thats the main thing.

I've had the same prep as you on three occasions. Its not too bad to get down but it can take a while to start. How many times you 'go' varies between people. I lose count tbh. Even where my first dose is at 8am, I am still going at midnight. Although it is just clear liquid that I'm passing...

Yay that you finally have a date! Fingers crossed it will be kinder than your last one...sounds like with this new GI there's a good chance it will be. Lets us know how you get on.

That is a novel beside manner indeed. I hope it does not end up being an ouchy approach too! Did he speak to you about how they will approach things given your history if they do go in? I hope you are able to find little things to enjoy. There's nothing like a good book to curl up with.