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Crohn's Disease Forum

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  1. J

    New Diagnosis of IBD in 12yo daughter - 2nd opinion advice and Tamiflu question

    Sorry to hear your daughter is going through this. It is so hard to see your kiddo in pain. My son has crohns and started on prednisone and 6MP. I wish his GI would have told us about een so we would have had the option of that vs prednisone . He too gained a lot of weight...was down to 70...
  2. J

    Heard from Doc today

    Great news! Hope your daughter continues to do well!💜💜💜💜
  3. J

    Flare--ugh

    Sorry to hear your daughter is not doing well. She will be in my prayers....hope she gets to feeling better soon!💜💜💜💜💜
  4. J

    Alternatives to Nsaids for injury's

    Have you tried lidocaine patches?
  5. J

    High Temp is normal with Crohns?

    Has she had a wbc scan? This is a whole body scan, take blood first, add isotope, reinject blood, and then scan. The scan shows any area that has a large amount of white blood cells gathered because the isotope attaches to wbc’s. Could indicate where infection is hiding.
  6. J

    Which has worse side effects?

    Crohnsinct....how do you know your daughter is losing response to remicade? Is it through symptoms or blood work or both?
  7. J

    Second opinion?

    My son is also 11, diagnosed at age 9. He was initially started on 6MP which worked well for his crohns but took several months for his symptoms to improve. Even though his GI symptoms were under control he had a lot of joint problems and continued to have elevated sed rate and crp for over a...
  8. J

    Cat's Exercise Diary

    That's such great news that you got the job...they will be lucky to have you! I've been waiting to hear about your interviews. What exactly is a stool sample place? :) So glad Lily is doing well too. My neighbor has a corgi that barks every morning and it always makes me think of Lily...
  9. J

    10y. old son newly diagnosed, sed rate high for months

    Just an update for my son...had his 4th remicade infusion Friday and just got labs back today. ESR is NORMAL for the first time since July 2016!!:dusty: He is doing great with no gut or joint issues!! Many thanks to all the parents on this forum for all the support and great advice!
  10. J

    NG tube assistance

    I use 1/4inch steri-strips at work(usually 2). The threads are strong and work well.
  11. J

    Cats and Biologicals?

    Toxoplasmosis is not so much an airborne disease but can be inhaled from the dusty cat litter (that's if the cat is infected). Gloves and a mask would be good protection but if there is someone else that can do the litter box cleaning, that would be even better.
  12. J

    Cat's Exercise Diary

    Hope you are feeling better soon Cat!
  13. J

    Cats and Biologicals?

    About 80% of all cats have a bacteria in their mouth/saliva called pastuerella, which can be transmitted to humans from a lick to an open cut or a bite. Cat feces can transmit toxoplasmosis to humans only if their feces is infected. Also infected fleas can pass disease to cats and humans as...
  14. J

    6mp

    When my son was diagnosed he was on prednisone taper for 2 months and 6mp. He had no side effects but took about 4 months until his levels were therapeutic and symptom free if crohns symptoms.
  15. J

    Cat's Exercise Diary

    Glad to hear Lily is still being loved and spoiled! It is so easy to feel guilt when the time comes but you'll know in your heart you are doing the best for your Lily. I work at the hospital and when families aren't sure if they are making the "right" decision when taking their loved one off...
  16. J

    10y. old son newly diagnosed, sed rate high for months

    Hi Maya, I am surprised after two remicade treatments his legs are feeling great, having no pain at all! He had his first infusion, then again after two weeks. Now they will be every 4 weeks. We even did the Crohn's walk on Sunday and his legs didn't bother him at all!
  17. J

    10y. old son newly diagnosed, sed rate high for months

    My son started methotrexate and has had two doses of remicade and sed rate is now down to 24...best it's been in over a year and he is feeling great! Sending my sincere appreciation to Maya and MLP for guiding us in the right direction!:ghug:
  18. J

    Antidepressants

    MaryCherub, I'm happy for you that your natural way of treating depression is working for you but you are right when you say everyone is different. Not everyone that is depressed has a vitamin deficiency and I'm sure most people here having crohns would already know that info as most have...
  19. J

    Diagnosed with C Diff

    My son had c dificil last year. He was treated with flagyl for 2 weeks with no improvement then was added vancomycin for 2 additional weeks. Also he had a recurrence 2 months later and was treated with flagyl for 4 weeks. If you're not on probiotics I would ask for that. Did you have an...
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