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Thank.you Patti for your reply.My meds was increased and I didn't tolerate that ,so back down to original doze. Still in a lot.of.paim but will be adding Methotrexate tabs once a week, to see how I do? I did react to Remicade infusions for Crohns ,so that is not an.option. I will also be...

Hi everyone, I was doing well on my meds until recently. Unfortunately, the doze has had to be increased as pain is back in full force. My Crohns, itself, is under control ,manageable. Methotrexate is not an option for me as I didn't do too well on it for Crohns itself a few years ago. Any...

I have been on both these meds and had to come off them .Remicade too ,sent me into hospital with breathing difficulties . So, I am glad I seem to be doing ok on present meds. Looking forward to feeling stronger and getting out and about again. Thank you all for your support at this difficult time

I am not seeing my G.P. either as she has passed this on to Hospital Consultant. Hopefully. this dosage of meds works, as increase would interfere with my Crohn's meds. So far , so good. I have improved enough to feel more comfortable , but still in pain. On pain relief meds too. It is not a...

Unfortunately, that is how it is here. My face to face will not be until December! Blood tests are purely to check I have no side effects ,or complications. I shall just have to make sure I relate exactly how I am!

Thank you for your positive, helpful reply. I am being monitored every two weeks : blood tests. I have a history of bad reactions to drugs in the past. So far,ok! It is a telephone appointment in a few months time. This now seems to be the norm after Covid lockdowns! I am making sure I...

Hi there, thank you for your prompt reply. I am on sulfasalazine 500mg , 4 a day. I have been told it will take up to 4 to 5 months before I start to feel the benefit. However, the pain has eased a bit after 2 months, but I am weak and walking is impaired. Confined to the house just now...

Hi there, you will eventually find the foods that agree with you,and those that cause flare ups! For me, cheesy sauces,cream or rich gravies are a no- no. Good luck with your diet. I hope you feel better soon.

I have been diagnosed now with Crohn's related arthritis! It began with shoulder pain,just thought I had pulled muscles? Walking impaired and weak! Any advice would be helpful? Thank you.

Hi there, Jacamanda Sorry to hear you have had so many problems. I hope all goes well for you and you get better soon. Best wishes.

Hi there, and welcome to this forum. I too was diagnosed later in life, so it can happen. My Consultant said it went back years, diagnosed as Diverticulitis, plus Hiatus hernia years before! Only when I began to have pain and bouts of Diarr...after tests, was told it was Crohns. I have...

Hi there, I feel it is just the richness and consistency of sauces in cooking. Macaroni and cheese, my own lovely grilled in the oven one, sets me off. I do eat little portions due to the hernia, and I am o.k. with condiments. I did live through a very difficult time with infusions. and...

So sorry, you have had such a trying time! It is good news to hear of your lovely daughter,a blessing to you! I try to deal with the present,it is more than enough to deal with. Life with Crohns isn't easy though. Take good care of yourself.

Sounds yummy! I hope you get good care now,and start to feel better soon.I know it does take time to diagnose Crohns and find the right treatment that suits you! I have gone through all that. Get well soon.

Hi there and welcome. I hope you get a diagnosis soon and some relief from the pain. As you say, you already have one condition so hopefully you get a solution soon. Keep well/

Hi there, I was originally diagnosed with Diverticulitis and a hiatus hernia. Different meds for both. Was only diagnosed with Crohns in my later years too when I began suffering severe tummy pain! I am presently on the meds you are on , Salofalk 3gr daily. I am doing very well on that...

Hi Monet Janet, you certainly have had a long and difficult journey with you health issues. I had many years of uncertainty, reaction to meds etc and worries too so I feel for you. Eventually meds that are keeping my Crohns symptoms stable, were found. So I wish you well again soon. No two...

Hi there, glad that it doesn't seem to be Crohns , but hope they find an answer soon to your concerns. I hope you feel better soon as you have had a lot of tests, and that is not pleasant either. Do watch your diet as some food can irritate the tummy. I know I have to avoid rich gravies or...