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Crohn's Disease Forum

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  1. Honey

    Just a quick introduction.

    Hi Petra, and welcome. Glad to hear you are doing well. I have been well for a year and a half after coming off Remicade infusions. I had to stop due to reaction - ended up in hospital with a lung infection. I am now being asked to consider going back on it as my Calprotectin results were...
  2. Honey

    New to Crohn's

    Hi there Krishna, It did not take long for my first appointment for Infliximab infusion. It is usually what is offered when meds fail. I went to the hospital ward every 8 weeks. Unitially, sooner than that. You are monitored bloods checked each time. Take a book to read as it takes three hours...
  3. Honey

    You want the sleep? You can't handle the sleep!

    Hi there, I sympathize and empathise with you . When I was on a large doze of Prednisolone I became hyper. I have mobility problems, yet managed to climb a set of ladders and paint the walls in my lounge. I finished that, and moved on to the kitchen!!!!! My home has never looked so...
  4. Honey

    Wondering if someone could help me find some peace of mind.

    Hi there, and welcome. Do not worry. Constipation can cause some bleeding sometimes and bloating. I am glad you are seeing your doctor to get checked. You will feel a lot better after you discuss your problem with your Doctor. In the meantime, look at your diet and vary it , including...
  5. Honey

    Husband has Crohns. He's very ill, I'm very sad

    Hi there, so sorry your husband and you are having a hard time. I do understand because unfortunately Crohns is unlike other illnesses. It is a very individual one regarding symptoms and treatment. I was on the meds you mentioned but I had to agree to Remicade infusions as all else had...
  6. Honey

    What do you do if afraid of Remicade ?

    Hi there and thank you for replying to my dilemma. I was in hospital for three weeks and so ill, that naturally I am afraid. I was told this could happen again. However, I am taking one day at a time and await the repeat test results to see where I am now! Yes you are right, some choices are...
  7. Honey

    New to forum....

    Hi there just a note to wish you well again soon. I have no experience of your awaited surgery but hope all goes well for you.Best wishes
  8. Honey

    New to forum....

    Hi there and welcome, so sorry you are having a difficult time. I do hope you get relief from your symptoms soon and start to feel better. Let us know how uou are doing. :getwell::welcome:
  9. Honey

    New to Crohn's

    Hi there and welcome, I read your story and can empathise with you. I had a lot of changes of meds, but over a year as they either caused side effects or did not help. It is how it is until the right meds are found for you. We are all individuals in our response to treatment and our illness...
  10. Honey

    The Story of Me

    Hi there, and welcome . I am glad you have eventually had a diagnosis as it hard going through all that. I hope the Humira works for you. I was on that for sometime ,giving myself the injections. Yes, this illness does affect your thinking and emotions, naturally! I take it by brain fog...
  11. Honey

    New to Crohns but not GI Problems...

    Hi there and welcome, Remicade worked for me when all else had failed. It is finding the right treatment that suits you and helps is the most important thing. So I hope all goes well for you and you feel better soon. Let me know how you are. Best wishes. :rosette1::welcome:
  12. Honey

    Would appreciate some advice

    Hi there and welcome, I was on Remicade infusions after all other meds failed or caused me bad side effects. I was well on Remicade even though I was not keen to be on it. I have been off it now for over a year as I have been well. However, my tests results are not good, so I have to consider...
  13. Honey

    What do you do if afraid of Remicade ?

    Hi there thank you for sharing a bit of your experience with me. I am feeling better today but I know that is no indicator. I await results of last test and will see what my consultant has to say. Not easy!!!!
  14. Honey

    What do you do if afraid of Remicade ?

    Hi there, It was after suffering side effects of other Meds for Crohns ,that I eventually agreed to infusions. I was on them for about 8 months and was well until I ended up in hospital with a lung infection and had to come off Remicade. I have remained well for a year and a half! Now...
  15. Honey

    Single mum of one. Crohns for 13 years. Hi!

    Hi there and welcome, Wishing you well again soon. I was reluctant too to go on Remicade but I had to go for it, and it worked. So I hope you find the right treatment that helps you. Best wishes.
  16. Honey

    Hair issues!

    Hi there, I had problem scalp and dry hair for about two years. No shampoo worked, even doctor prescribed. I saw an advert in a beauty programme on T.V. by accident, and tried their recommendation for itchy scalp, not dandruff! It worked!!! Try Molton Brown Indian Cress conditioner a...
  17. Honey

    Alendronic acid

    I have a friend who has injections as tabs did not work. I do not know the interval but I have the impression it is unpleasant. However we are all individuals in our treatment so you have to make up your own mind I have been on tabs for years no problems!!
  18. Honey

    Alendronic acid

    Hi there good luck Remember swallowing a pill once a week,staying up for half an hour then having breakfast, is much easier on you than injections It is important to take this med to avoid bent over back in later life. I had a fall and should have broken my hip but emergency doctor at E R said...
  19. Honey

    Alendronic acid

    Hi there, sorry to hear you are having all these problems. I have been on Alendronic acid for years and even though I have a Hiatus Hernia, it does not bother my tummy. I do have Osteoporosis and my meds have helped, increasing the bone density. I have had a number of falls in the past...
  20. Honey

    Question - Colonoscopy & CT Scan

    Hi there and welcome, I had a colonoscopy followed by a C.T. scan when my Calprotectin tests showed high figures. The Scan gives a more detailed picture of all the bowel area. The colonoscopy only goes so far. I hope this helps and all goes well for you. Let me know how you are. Best...
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