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I feel more discomfort than pain now. It's not like we can forget about setons, is it. Kinda hard to ignore. :D As I get use to them I am doing more. The one consistent thing is the pain getting in and out of vehicles. Trying not to drag the setons and tug on them. That's a bit uncomfortable.

Welcome G'day Glad you found the forum.Love your attitude!

Though we all react differently,I think the the most common side affect many of us share is fatigue after an infusion.Some people go home and have a nap(that's me)and others are not affected at all.Since this is your first infusion your nurses will monitor you closely and ask how you are feeling...

Very nice to hear from you! I'm glad it is going well.She does not get on frequently,but PenguinVic spends time in Myanmar teaching.It'll do you good to get away from the internet for awhile...unplug and focus on your life there.Enjoy!

Staying positive can be a challenge for many of us, especially after a recent diagnosis. It may seem overwhelming at first,but we are able to live a quality life. We may have to adjust and put more thought into what we do, but with some effort, we can still do many things. I was diagnosed a...

Welcome Glad you joined after hanging out in the weeds for a spell. Many of us did that,kinda like taking a test spin to see if it's for you.:) In my opinion,you came to the right place to get a little support.So many different stories. I have never been a fan of the swing shift schedule.You...

Yeah,good luck on Monday Flatblackdog.Let us know how it goes.

Whit ,here is a link http://www.breakingtheviciouscycle.info/

Whit I follow the SCD. Have you checked out the official website for the SCD? Have you read 'Breaking The Vicious Cycle'? Extremely informative and interesting,even if you don't choose to try the diet,in my opinion. I pop over to the SCD support group on the forum,but they seem to argue quite a...

I switched GI's myself. My current GI is great with answering questions. He is very patient with me and my concerns and he doesn't keep his nose in a laptop during the visit. He actually sits and talks. I'm a very visual person and he will use the various posters and charts in the office to help...

Hi I'm told by my colorectal surgeon I will have my setons for several years,at least,in his opinion. I'm hoping it may be not as long as he previously thought since they are looking better then he expected them to look. My drainage has reduced since the fistulotomy in July. I still have...

Welcome Jane I'm glad you are doing well!

DJW-I had my 5th infusion on 12-30 and it is the first time I wasn't fatigued after.I usually come home and nap for a few hours.I'm also fatigued for a few days after the infusion each subsequent time. I had an appointment with my colorectal surgeon before the holidays and he said my fistulas...

Having a GI you can trust is important.Do you not like him because of the Remicade and Humira recommendations? A good doctor tells us what we need to hear,in their medical opinion,to fight this disease. Are there other reasons? I hope you find one you can work with.

Hi Yeah,it can take a few treatments to feel any improvement.The mantra of we are all different holds true to infusions as well.I noticed I felt less fatigued after the second infusion.I should clarify,I felt fatigued for a few days after the infusion and then felt noticeably better.I lost the...

Welcome Sorry to hear about the diagnosis.I was also diagnosed as an adult,at age 50.Have you checked out the diagnosed at 50 and over support group? http://www.crohnsforum.com/showthread.php?t=60132 I'm glad you are keeping your GI in the loop about your approach.Honest communication...

Happy New Year Lynn! It's great you want to help others going through this disease.There is ample opportunity on the forum to support others and share knowledge,to crohnies of all ages.I'm hoping you have had time to check out the forum since joining. I'm glad you are dealing with your issues...

Welcome! You have had quite a journey.So happy you have a husband and children who are there for you.I hope you continue to have a great quality of life for a very long time!

It is rough to hear you have been diagnosed with an incurable disease.I was diagnosed a little over a year ago and clearly remember that conversation with the doc.Knowing what you are fighting may seem like a small consolation,but it is important. You can work with your GI and decide the best...

Excellent! Five K 's are popular around here. I've always wanted to do one and stories like yours encourage me. Thanks for sharing!