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Crohn's Disease Forum

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  1. dave13

    The journey continues now Humira

    I hope humira along with the methotrexate works for you.
  2. dave13

    Has SCD diet helped anyone with crohn's?

    Sorry to hear your daughter was diagnosed with CD.I know we are all different and I find I benefit from the SCD.Here is a link to the SCD/Paleo support group Ron suggested. http://www.crohnsforum.com/showthread.php?t=48313 Diet is an energetic topic between crohnies. What works for some may not...
  3. dave13

    Another day in paradise!

    I hope you have a great week of classes.Going into it being positive is a good thing.Being prepared for your last week of classes is good too...but I won't go there.Good luck!
  4. dave13

    Fistulas, Fissures and Abscesses Support Group

    My GI and colorectal doc are not pleased with the progression of my fistulas.My GI wants me to add Imuran.I understand Imuran along with Remicade has shown results...just the fact of adding another 'drug'.The fistula the seton was removed from is doing fine,still draining a little,butt(ha,ha)not...
  5. dave13

    Remicade Club Support Group

    I go for the 8am infusions as well.Have it done and continue with your day.I have one this Friday and my wife is coming with me.I should get done just in time for us to go to lunch.
  6. dave13

    Remicade Club Support Group

    Hi hkspence.Yes,draining setons do just what they say(or hopefully do what they say),and that is to drain.Remicade is suppose to 'dry' them up,as my GI says.How long it takes is different for everybody.I had my first seton removed a little over a year from the fistulotomy and my first...
  7. dave13

    Losing the will :(

    Hi Daisypie and welcome to the forum.Sorry you are dealing with all the stress of being undiagnosed.You are right how IBD affects everyone differently.Stress is a big factor with IBD as well as IBS.Have you checked out the support group for those who are undiagnosed...
  8. dave13

    Intestinal Blockage / Obstruction Support Group

    Here's a 'should of known better' story. My wife and I went to the movies yesterday(Pride and Prejudice and Zombies)and I had some popcorn,with butter,of course. We shared a root beer,refined sugar for the most part. After the movie we had some local gelato,very good. Unfortunately,with more...
  9. dave13

    Fistulas, Fissures and Abscesses Support Group

    I will.I am so happy the first seton removal is doing well. I was told it will still drain and it does.No new abscesses have formed,a good sign.I will post after the second seton is removed.Hopefully,in a couple weeks.
  10. dave13

    Fistulas, Fissures and Abscesses Support Group

    Hi g_sing. I have had a fistulotomy with three draining setons placed. That was close to two years ago. I recently had a seton removed by my colorectal surgeon. The fistulotomy was a surgical procedure in an operating room and the removal was done in the office. If you are in pain,let your...
  11. dave13

    Remicade Club Support Group

    I agree jujub. We don't want to have infusions,but when it works it is a good thing. I am,hopefully,having a seton removed in two weeks. This will be the second one I have removed. I have to say remicade has helped me. This Friday will be infusion number 15.
  12. dave13

    Fistulas, Fissures and Abscesses Support Group

    Hi Abbynormal The choice to use remicade is a hot topic.Personally,it has helped me.I had a fistulotomy/seton placement last July and started infusions.This past September I had a seton removed,way before I thought was possible,and am doing well.I saw my colorectal surgeon two days ago and he...
  13. dave13

    Best news ever

    That is great news!
  14. dave13

    My Story and Treatment Options

    Welcome laura 98.The Promethius test is the standard,to my knoweldge,for anti-bodies for Remicade. It is a simple blood test that gets sent off to California labs. It detects anti-bodies. Infusions every eight weeks are the standard.Loading doses are more frequent,as you experienced.I have had...
  15. dave13

    Finally Diagnosed Late in Life

    Welcome to the forum.This disease may make us alter our lives,but,as scotsma says,take one day at a time.It takes a bit of getting use to.We may have to adjust our lives but we can still live them,in my opinion.The forum was/is a great place of support for me when I was diagnosed.Communication...
  16. dave13

    Newly diagnosed with IBD - want to reach out to the community

    You may hear the term 'new normal' on the forum as you check things out.IBD is a challenge and we may have to alter our lives a bit as we fight this disease.It may not seem like it now,but you will be able to live your life.Granted,we are all affected differently.Like you said,coping with this...
  17. dave13

    New diagnosis at 50

    Sorry for the diagnosis,but welcome to the forum.Diet is a pretty hot topic for chronies.I hope you find something that works for you.Have you checked out the various support groups concerning diet?Many doctors do not acknowledge diet as a tool to fight this disease,which just stuns me.Did your...
  18. dave13

    Question on seton placement

    Yeah,getting use to setons takes some time.The support group is a great place to share your story and find/give support.You will get use to the setons,they will always remind you they are there,but you will get use to them. So far so good with the seton that was removed.We will discuss another...
  19. dave13

    Newly Diagnosed- at my age!!

    Welcome,glad you found the forum.Like ronroush7 says,there is a wealth of information here.I was diagnosed later in life too,at the age of 50.There is a support group for folks like us,Diagnosed at Age 50 an Over. http://www.crohnsforum.com/showthread.php?t=60132 A good place to share your story...
  20. dave13

    Question on seton placement

    Welcome to the forum.I have setons as well and can relate to getting use to the knot.I had three setons placed,by the way.It will take a bit longer than a week to get use to them.I would say it was several months,for me,to get use to them.I have had them for sixteen months now,recently had one...
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