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54th!? Here I am around infusion lucky 13.Do you have your own recliner with your named etched into it it? :)

I urge you to bring your concerns to your GI.He/she may help relieve your concerns about actual numbers of reactions during infusions.You are monitored quite closely during infusions,especially during your loading doses.They keep a close eye on you. I started infusions July of last year,15...

Thanks aarthi,so far so good.When I had the fistulotomy I was told the setons would be in 'for some time',possibly years.Imagine my surprise to have a discussion of removing one after just over a year and actually having one removed.I may not want to be on Remicade but have to acknowledge(in my...

Hi Jay I do feel fortunate the seton removal is going well(knock on wood)so far. I was told the drainage may increase from the fistula the seton was removed from. It did increase for approximately a week and a half and now drains similar to the fistulas that still have setons. The drainage...

http://www.crohnsforum.com/showthread.php?p=891921#post891921 I had a seton removed and posted it in success stories. Here's the link.

I had a draining seton removed about a month ago. So far so good. I had it removed in the surgeons office! I was told by his nurse it would be another procedure but the doc comes in and says we can do it right here. I thought he was kidding me,he does have a good sense of humor. He says,with a...

Nothing much to report can be a good thing. :-) Glad it went well for you Soohie. Being well hydrated can assist in making the infusion go smoother. ie,inserting the IV.

Hmmm...not sure what I did. You deserve a date night.

Good to hear your husband is doing well. It is encouraging news! This may be coincidence,I had low blood pressure when first starting Remicade. It is fine now.

A big concern when not treating this disease is the damage that can happen over time.Let us know what your GI says.

Glad to hear his appetite is back. :thumleft: I finally felt my body was able to utilize the food I was eating once I started infusions.

Welcome to the forum It is great you have a GI you can talk to and discuss treatment options. Keep the line of communication open and ask questions.Something I do to this day is write down questions I have for the next time I see my GI or colorectal surgeon.I bring my notebook to my...

astarks-keep us posted how that works for you.

Yes,call his GI. During the loading doses I would have times of feeling pretty good and would all of a sudden hit the wall. The fatigue would hit me hard quite suddenly. It wasn't until the maintenance schedule things seemed to even out a bit. Let us know what the GI says.

Hope the monitor wasn't too uncomfortable. We may all be different when it comes to this disease,but we all wait for test results. I like the phrase 'hurry up and wait',very appropriate.

There is a lot to take in at the first infusion.Paperwork and questions as well as the infusion itself. Hopefully Remicade helps your husband.Tell him,in my opinion,once you get through the loading doses and on to the every eight week maintenance schedule it is easier to deal with. It may seem...

I'm glad you joined and relate the success stories to your husband.He is fortunate you are so supportive and seeking information.I know I said that already,but it is true.Yeah,we share everything on here,good and the bad.All the honest stories can be intimidating when you are first diagnosed...

How did the tests go?

Hi ymny123 Diet is a hot topic for sure.There are as many opinions as there are crohnies,in my opinon. Many mainstream doctors barely consider diet as a tool to fight this disease. Have you checked out any of the diet and fitness support groups? I agree with Caitlin84,ask your GI what...