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Crohn's Disease Forum

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  1. cookey

    How is everyone doing

    Hi Jeff, nice to meet you. I'm mama Crohnie..., or if you want, just call me Deb* Looking forward to getting to know you hun.
  2. cookey

    Medications

    Hi everybody, hope you're all having a great weekend. Just stopped by to see my crazy wacky friend...talking to her other voice...lmao. Little does she know I've fallen on the floor and I cant get up, lmao. Oh God, you kill me!! Is this allowed Mike? To be chatting about nothing right now? :o...
  3. cookey

    That Pain in the Butt

    I'm loving this more then you all know...I looked high and low for a good place to share thoughts, even though I'm well now...I still like to listen to others, and try to help at all if I can. I can't thank Mike enough for his great efforts in starting us out on the right path, to sharing our...
  4. cookey

    What foods do you avoid?

    I know for me, I couldn't eat anything ruffage...peanuts, lettuce, etc. Anything that would irritate the bowel in any way. My big thing was Chocolate milk, and still bothers me today even after having the Colostomy. It goes right through me..does anyone else have this problem? Or with just plain...
  5. cookey

    Missed my prednisone this morning!

    You're all absolutely right, !8 yrs experience with Prednisone...for such a little pill, it sure has big effects. Ree Ree couldn't be more correct in saying never ever just stop taking prednisone...Big huge mistake. They have to taper you off that medication...but I think Ree just mentioned...
  6. cookey

    MY story...

    Gosh honey, you sure have been through the mill and back...to say the very least. You are so right when you say we have to do what makes us happy, and try to avoid stress at all costs (I know that's hard) but for our self of well being we must do this. Another inspirational story...and I am so...
  7. cookey

    IBD Quilt Project

    I'm glad you shared this link...I hope everyone has the chance to see the dedication that people have for our Disease.
  8. cookey

    That Pain in the Butt

    Hi Amy..it's a great pleasure to meet you. What a truly inspirational story you have. Between you and I and Ree...WOW!! I am thrilled to hear your life has changed for the better. Keep up your great spirits hun. :)
  9. cookey

    Hi everybody!

    Thanks Mike...yes, pretty awful stuff, and that wasn't even half of it. I'm glad to hear everyone is doing relatively well with their Crohn's. Ree..your killing me over here, ...funny gal I gotta say, the best humor, keep it up gal, cause lord knows crying isnt going to get us anywhere. Yessim...
  10. cookey

    Normal until...

    Sounds great to me gal...lets do it. We could potentially have money in the bank...do you think? Love that name Colostomy Coozies, excellent!! Drop me a line anytime. Hugs
  11. cookey

    Hi everybody!

    WOW Ree, you and I could write a book I'm sure. I thought I told my story, I actually did in brief...so here we go with my life living with Crohns/Colitis. I was 17 yrs old with a great job working for Met Life Insurance. A word of warning, some very graphic details...but all reality. I came...
  12. cookey

    Normal until...

    Well Ree Ree, I am the oldest on this site so far....Hey someone has to be. Not only am I the oldest, I'm the oldest baglady...hehehe, and yes darn proud of it. I'm thinking about designing my own designer pouches...whatcha think about that? Come on now, wouldn't it be nice to walk around in...
  13. cookey

    Medications

    LOL LOL, I love your humour and attitude Ree Ree...and the song was Don't stop till you get it on, ...I think :o
  14. cookey

    Medications

    Not everyone does have to wear pouches the rest of their lives. It depends how advanced you are in your disease. In my case I do have to wear mine the rest of my life. It doesnt affect me or anything I do. Actually, I can do more now, then I ever could before having the surgery. I can eat...
  15. cookey

    Medications

    I was on Prednisone for 18 yrs. Deadly drug..I don't personally recommend it, because of the awful side effects. However, I must say this...it did help in controlling my flare-ups. When I went off it in 1987...I came down with serious allergies, lose of hair over the yrs due to prednisone, and...
  16. cookey

    Famous people with Crohn's

    Mary Ann Mobley, some of you may not know her. She is an actress, as well as former Miss U.S.A., back in the day. Singer ~ Anastacia has Crohns David Garrad (NFL quarterback) Crohns Mike McCready (Pearl Jam guitarist) Crohns
  17. cookey

    Normal until...

    I..... like you Mike, was a very active teen..never sick a day until I turned 18 My world fell apart. I was diagnosed in 1978 after hemmoraging from the bowel. One could say Crohn's has been my whole life. In and out of hospitals for months at a time. I missed my teenage years, as well as losing...
  18. cookey

    Does anyone related to you have Crohn's?

    I find it interesting, that Doctors say Crohns is not heridatary...my Grandmother had Colitis/my Aunt/ and my Uncle was diagnosed a short time after I was diagnosed with Colitis. Furthmore, his son..my cousin, was diagnosed with Crohns 5 years ago. Is it just me, or is that all to strange and...
  19. cookey

    What did you know about Crohn’s before you were diagnosed?

    I knew absolutely nothing, and neither did the Doctor's for that matter. In 1978, they had no clue...all they new is that I had a bad case of Diarrhea, and didn't take any tests. Of course because of this, I hemmoraged from the bowel and almost died. One year later, they finally could put a name...
  20. cookey

    Get well soon card

    LOL, This is great...and probably the best medicine for us who suffer from Crohn's. Great pic...and a great friend!
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