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  1. trebor-HI

    Medicare Coverage for Stelara

    Was wondering how many people following this thread are enrolled in a Medicare Part D plan. My understanding is that all Part D plans have to follow the same medicare rules. It'd be interesting to compare notes. I've been taking stelara since 2018 and turned 65 in 2021. I'm in my second...
  2. trebor-HI

    Skyrizi

    Anybody familiar with Skyrizi? Stelara was dropped from my insurance company's formulary and there's murmurings about switching me to Skyrizi. Apparently it targets the protein IL-23 as does Stelara. But Stelara targets both IL-12 and IL-23
  3. trebor-HI

    Starting Stelara

    Hi DougUte, Perchance is your provide U of U? Interesting that they asserted Remicade was not an option in 2018 then relented when the insurance company insisted that it be tried. It seems Stelara is pricing itself out of the market. My insurance company just removed it from its 2023...
  4. trebor-HI

    Exciting new vedolizumab injections!

    In the United States, is Entyvio still administered by infusion only?
  5. trebor-HI

    Medicare Coverage for Stelara

    Just got that letter today! Unfortunately, anti-tnf's are not an option for me as I had a neurological side effect to humira. As far as I know, the only other biologic that is an option for me is entyvio.
  6. trebor-HI

    Medicare Coverage for Stelara

    Hey Kannassee, are you on medicare?
  7. trebor-HI

    Medicare Coverage for Stelara

    just to clarify, you said you just started the injections. Do you mean that thus-far you've only had the loading dose that is administered by infusion?
  8. trebor-HI

    Medicare Coverage for Stelara

    I described in an earlier post about the billable amounts for stelara when on a commercial plan (prior to age 65) vs the billable amount now that I'm on medicare. When the gov got involved, the price tripled. Also, when on medicare, you are not eligible for the manufacture's co-pay assist.
  9. trebor-HI

    Medicare Coverage for Stelara

    This year, 2022, is the first year my Stelara was covered by a part D plan. I've self administered and have been billed for five injections. The cost & co-pay data was all the same for injections 2 thru 5. So, I don't expect my final injection for the year to be any different. I didn't pay...
  10. trebor-HI

    Medicare Coverage for Stelara

    "Retail cost varies by specialty pharmacy. It’s close to $23000 per shot right now per the drug insurance claims for my kiddo on Stelara every 4 weeks" I've had 20 injections thus far all administered by a hospital infusion center and billed to my medical plan. I built a spreadsheet of all...
  11. trebor-HI

    Medicare Coverage for Stelara

    So, I finally made 65 years old May 2021. My insurance was such that both the initial dose administered by infusion and the maintenance doses administered by subcutaneous injection were covered by my medical plan vs my drug plan. This was the case with the commercial plan I had prior to...
  12. trebor-HI

    Flareup?

    Interesting that you lived with Crohn's, medication free, for 30+ years after resection surgery. Was the resection in your large or small bowel? My thoughts on your questions: The bout of vomiting is common with small bowel obstructions. But, the CT scan did not reveal any blockages so...
  13. trebor-HI

    Iron IV treatment

    I suffer from iron deficiency anemia and have had three iron infusions during the years 2014, 2017 and 2019. In the weeks following my iron infusions, I saw improvement in your blood test results. I'm a runner and my times improve as my blood improves. As the weeks and months go by, my...
  14. trebor-HI

    Medicare Coverage for Stelara

    gee, are you paying full price for Stelara...out of pocket? I'm on Stelara and turn 65 in about two years. Wondering what to expect...
  15. trebor-HI

    Medicare Coverage for Stelara

    I also am trying to understand what if any medicare coverage exists for Stelara. I'm 62, so I'll need to figure this all out over the next couple years. As far as I can tell, the medicare advantage and part D drug coverage plans offered by the company I retired from, does not cover Stelara...
  16. trebor-HI

    Cost of Stelara

    Just to follow-up on my earlier post. The eligible charge for the Stelara infusion and injection were $8,998 and $7,061 respectively. The Stelara was provided by the hospital pharmacy and both the infusion & the injection were administered by the hospital infusion center. When I inquired...
  17. trebor-HI

    How long does it take Stelara to work?

    I've been taking one Ferrex 150 capsule per day for the past several months. And, I had an iron infusion (injectafer) back in June 2017. My last blood test Hemoglobin was 11.0 g/dl. I'm a runner so I can really tell the difference as my hemoglobin levels decay...
  18. trebor-HI

    How long does it take Stelara to work?

    It's been 14 weeks since I started treatment (390 mg induction dose, 90 mg maintenance dose every 8 weeks). Feeling pretty good but my anemia is still a problem. I assume this means the Stelara has not yet led to mucosal healing.
  19. trebor-HI

    Worried that running causies inflammation

    Any troubles with iron deficiency anemia? If so, that will impact your running pace. My running times improved dramatically after an iron infusion and associated improvement in hemoglobin. Really shocked me what a difference it made.
  20. trebor-HI

    Cost of Stelara

    Yes, I'm signed up for Janssen's Co-pay assistance program. I'm interested in what the insurance companies are paying for our Stelara treatment. The so called "negotiated cost". Both for the loading dose administered by infusion and the maintenance doses administered by self injection.
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