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Crohn's Disease Forum

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  1. rrhood1

    Interaction With a Physician's Office

    I have email access to my GI as well. I can email questions and when I did have a flare that was not stopping, she made arrangements for me to be admitted to the hospital. I also deal with the nurses rather than reception - reception hasn t got a clue and the nurses are always much better...
  2. rrhood1

    New to humira

    Glad it worked. Now you're over the worst. I hope it works well for you.
  3. rrhood1

    Entocort Mental Symptoms?

    I was the proverbial *itch on wheels when I was on steroids. I had to get my boss to review my correspondence in case I insulted a client. I had uncontrollable rages about nothing. I'm so glad I don't have to take it.
  4. rrhood1

    New to humira

    Toota: You have to do the loading dose of Humira at the start. Try putting ice on the spot you want the injection in. That will numb it a bit. Also I found that the injection in the stomach didn't hurt as much as the leg. After the loading dose, you will only have one injection a week. If you...
  5. rrhood1

    Sitting here, bawling...

    Kero: Crohns & IBD can be so individualized - everyone seems to have different symptoms and problems. I'm so sorry you don't have any answers yet. I hope the new GI is more helpful.
  6. rrhood1

    Humuria or Remicade, which one do i choose?

    Humira didn't work on me so Remicade was my miracle drug.
  7. rrhood1

    How many M.D.s have you seen?

    1 primary GI who diagnosed me & took me on as her patient (I absolutely love her). However when in hospital for a flare, I think I saw 10 different doctors including a GI surgeon that I fired and refused to let touch me.
  8. rrhood1

    Almost passed out, extreme sweating

    Get your GP to check your thyroid as well. My sweats like that turned out to be a tumour on my thyroid.
  9. rrhood1

    Some Struggling but Still Going Strong

    Keep going and take care of yourself! Good luck with the end of school!
  10. rrhood1

    Help with swollen joints?

    PsychoJane is right - seeing a rheumatologist may be the way to go. My GI gave me a referral to a rheumatologist who was well informed about Crohns. I was on Remicade and she put me on Methotrexate and although it helped somewhat and worked well with the Remicade, I still had sore joints. So...
  11. rrhood1

    Anybody find it weird having a GI of the opposite sex?

    Most of my doctors are female and are awesome. I have a male urologist and thyroid surgeon who are also wonderful. I've been very lucky in my doctors. The only one I had an issue was after my colonoscopy 10 years ago. I was meeting with the doctor that did it (a lady) and in walks this young...
  12. rrhood1

    Grand-daughter with difficult case; Crohns and gastroparesis

    I'm o sorry to hear about all of Mackenzie's problems. She seems to have a plateful right now. My prayers are with you. Keep us posted on her condition and remember you can vent or ask questions any time. Take care!
  13. rrhood1

    Grand-daughter with difficult case; Crohns and gastroparesis

    I'm o sorry to hear about all of Mackenzie's problems. She seems to have a plateful right now. My prayers are with you. Keep us posted on her condition and remember you can vent or ask questions any time. Take care!
  14. rrhood1

    Worried about getting sick/germs??

    As far as I understand it, Crohns is an autoimmune disease which means your immune system is in hyper-drive and starts attacking your body as well as any infections, etc. When you take some of the Crohns medication, it suppresses your immune system (sometimes down to none). Before starting the...
  15. rrhood1

    Assurance

    Ron: I'm off my Remicade as well due to a diagnosis of thyroid cancer. My GI suggested keeping to a low fibre diet, stay away from any trigger foods and if symptoms of a flare begin immediately go onto a BRAT diet or clear liquids. Hopefully I can get this resolved and get back on to it. Good...
  16. rrhood1

    New to Forum

    Welcome to the forum. I hope you get some answers from the scope tomorrow. A lot of were diagnosed after a colonoscopy. Let us know how you did. Take care!
  17. rrhood1

    New to Forum (have had Crohn's for 30 years)

    Welcome miry! I hope you find this forum as useful and as big a support as I do. Take care!
  18. rrhood1

    First colonoscopy SOS

    My GI had me on soft foods for 3 days before - no fibre. Clear fluids the day before the prep and only clear fluids with the prep. No liquids with red or blue dye - so only yellow or clear Gatorade. Don't worry - the prep will clean you right out as long as you drink it all. Depending on...
  19. rrhood1

    Partial Obstruction Treatment at Home

    Houndhearts13: I wouldn't use colonoscopy prep for a partial obstruction. There is always the chance you could totally block and end up very ill. Has your GI suggested anything when partially blocked? My GI has me immediately go on clear fluids then a couple of days later go on the BRAT...
  20. rrhood1

    Are you diagnosed immediately after a colonoscopy?

    I was diagnosed immediately - my scope was a five year follow up (my dad had colon cancer). I had almost no symptoms and my GI immediately put me on Humira and Imuran as my diagnosis was severe Crohns.
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