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I am currently on Entyvio and signed up with the Entyvio co-pay assistance. I am turning 65 in December so will be going on Medicare. Has anyone gone thru this transition with the Entyvio Manufacturer? I was wondering if I will still be able to receive their help?

A couple of years ago my insurance changed and I had problems getting the Entyvio set up again to the point where I had to start all over again. Hope that doesn't happen to you.

I am currently on Entyvio and called them today to see if I needed to give them my new health policy ID number which they do not need. They advised me that they are changing our Co-Pay Assistance program to a calendar year. We need to go to their site entyvio.com and then click on the right...

Have you tried applying for help with cost of Enyvio directly with the company? Go to their website and look at the Entyvio Connect Co-Pay Assistance Program. With their help and my insurance I am only paying $5.00 for the medicine and nothing else. Without their help I would not be able...

I have been on azathioprine for about 8 years now. First of this year I was told that I should have a complete body check with a Dermatologist once a year as our risk of skin cancer is higher. So glad that I did as I did have a spot that was questionable and had a biopsy done. It was...

Has anyone experienced hot flashes from the Entyvio? The flashes I have now are more intense than when I went thru menopause. The only other symptom is a little bit of fatigue. Still not sure if medicine is working or not. I will have my colonoscopy done on June 21st so I should know more then.

So glad to hear that you made it through all those scary moments. Dealing with Crohn's is not fun. My first surgery for a resection was back in 1980. I was in remission with no meds at all until 2007 when I had to have surgery as the colon was narrowing and was close to having an obstruction...

Has anyone gone thru the Entyvio Connect program to get help with the cost of the Entyvio? My doctors nurse just sent me paperwork to complete and it looks like if I qualify I won't have to pay anymore than $50.00 per 8 week infusion.

Dee, so glad to hear no reaction from the Entyvio. Gary, I am also between my 3rd and 4th dose. The next one is scheduled for November 3rd. So far I have had no change but not going to give up.

Thanks for letting us know Mamabird and Gary. Your news has certainly lifted my spirits. We can do this!!

Just had my 3rd Infusion of Entyvio yesterday. Of course nothing has changed. My Doctor is having me do another colonoscopy first of December to see if it is helping with the inflammation. Sure wish there was another way of checking.

My surgery stories are as follows. In 1980 had to have some of the sigmoid colon removed. When they took me off iv pain meds they gave me codeine. Unfortunately that is how I found out that it makes me sick to my stomach. Tests showed that where the incision was it had swelled up so I had to...

Caitlin84, I had the ileo-cecal valve removed back in 2007. I really don't see any difference with having that removed. Also back in 1980 I had about 1/2 of the large intestine removed. I did have to start taking a b-12 shot once a month which I do myself. Good luck to you!

Welcome to the group. I just joined this month also. I had my first infusion of Entyvio a week and half ago. Second one will be on the 29th. I have heard it could be about 6 weeks before we can tell if it works for us. I am also just on Imuran (was taking Humira but it stopped working after...

I forgot to say that I take B-12 shots once a month.

I found that the B-12 shots were helpful but my last blood workup it showed still low so I had to add a B-12 pill at 1000 mg. You might want to ask for another blood workup for the B-12 to see what level you are.

I was on Humira for several years and my doctor had my blood tested every 3 months. Hope Humira will work for you. It did me and I was also on Imuran. Unfortunately I had to change to Entyvio as my last CT showed the crohns now in the small intestine and the humira didn't seem to work on the...

I had my lst infusion of Entyvio last Monday. I had no reaction to the infusion but starting Friday night for a couple of days now the diarrhea is a little worse. I am also on Imuran. I am having to take Imodium to slow it down a bit. I won't have my next infusion until the 29th. I have...

Thank you for letting me know. Appreciate all the help and information that this forum has. I am 61 years old and was diagnosed about age 21. I feel very lucky that after my first surgery in 1980 and then until my 2nd surgery in 2007 I was not on any medicine at all. I actually had 2...

I have been on Imuran 150 mg for quite some time. Doc was wanting to increase the level but blood tests says I am at my maximum. My first infusion yesterday went just fine. No reaction to the Enytvio.