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Hello, Sorry to hear you have had such a horrible time with this disease. I have had a lot of reactions to drugs too and remicade caused me breathing problems and then had an anaphylactic reaction which was very scary. I am now on cimzia and the only reaction I have had is rosacea and dry skin...

I am feeling well but bloods are saying other wise low iron even with supplementation, very low vitamin d and inflammatory markers are raise but Drs are keeping a close eye on things. Baby is doing fine and all growing nice and healthy it's just taking everything from me but I don't care as long...

My crp was raised before and is still raised now it is always between 18-30 and esr is nearly always in the 70's. It's good to hear that the entyvio seems to be helping your gut but sorry that your joints are still bad. That's the problem I seem to have as soon as one seems to be under control...

Unfortunately because you have already been diagnosed with Crohn's disease it can make it really hard/expensive to get any private cover. I'm sure you will be able to find somewhere but will end up probably paying a lot out of your own pocket. Most insurers have moratorium underwriting criteria...

The only reason I could think that they do the first cimzia at home is because it is widely used for arthritis so it could be easier for people with mobility issues having someone come to your home. Have you asked if you could arrange meeting at a GP surgery or hospital? They may be able to...

Hi, I had a quick look and couldn't see anything regarding fertility and entocort (budesonide) and I would have thought it considered safe when trying and during pregnancy. It is one of the drugs that has been suggested to me as a back up in case I get ill. I was told as long as I am on...

It's not in the right place for hemmorhoids and I know it's not that as I have those as well as lots of large skin tags, the whole thing is a mess and I am tempted if I start getting more issues to have surgery to have a bit of relief. I believe I have a balanced diet, I try to get as much...

Thank you for replying and your advice, the bath is definatley helping the most. I have done some reading up about the zinc and it doesn't seem to say anything about it being unsafe supplementing whilst pregnant but I will check with my dr to see what they say. I left them a message this morning...

Hello, Just posting on here as I am in some discomfort and it's not something I have experienced before. I have had a sore bum all day this morning it wasn't so bad and thought it was just some irritation from wearing pads but it is worse it hurts to sit or lay down and even walking I can feel...

Good luck! Keeping my fingers crossed for you this works

I have tried humira and remicade had reactions to both and I am now on cimzia. I am doing well on it and have been for over a year now. It did take a while for it to start working and I would like to try weekly, like I did with humira, but the Drs won't let me because of the lack of data which I...

I occasionally use crutches when my legs flare up I had to use them last week sometimes I just use one to give me a bit of support. I didn't want to use a cane just yet so felt crutches are a good in between point for me as it doesn't feel permanent. I may move onto a cane if I feel I need it...

Hi BLM Sorry it has taken a little while for a reply just thought I would share my experience, I am 25 and I am currently 18 weeks pregnant with my first and taking cimzia. I knew that I wanted children before I was 30 and now is the right time for us because my health is doing ok and I am...

Hi I am currently on cimzia and 18 weeks pregnant and I'm not taking anything else as I am not able to tolerate aza/imuran. I have been on the cimzia for nearly a year now and whilst I am in no way a perfect picture of health I am much better than being on nothing at all. I had reactions to both...

Hi yvonne, I was on humira a couple of years ago now and it worked ok for me but I had to move up to weekly injections for it to make a difference. I didn't find the pens to bad they do sting but some find icing the area before injecting helps with that. What I found difficult is the pen makes...

Thanks for the replies. I have got a midwife appointment next Thursday and then seeing my GI next Friday so hopefully they will be able to put my mind at ease. I was speaking to my mum yesterday and she said even at 20 weeks she could still fit into her normal jeans (she has always been very...

Hello everyone, Been thinking about the weight I should be gaining during pregnancy and looking for anyone's stories. I am 15 weeks pregnant and have been reading from various places that I should have gained some weight one I read up to 5lbs. I haven't gained anything and lost 4lbs from the...

Congrats jenninmn hope you have been feeling well. And also congrats and well done Nicola on the birth of your daughter. It's good to hear she is doing well even though she was a bit early.

Thank you! Had a lot of sickness early on and went off food completely but that is better now. My hb dropped quiet low so I am on iron tablets now but only two a day and being checked to see if this is enough soon. Crohn's symptoms haven't changed since finding out still have d and blood but its...

Sorry to hear you have been having a rough time memmy hopefully the new meds will help soon. I have a bit of news not to much longer after my last post on the forum, when I thought I was waiting for my period to start it never showed. I did a pregnancy test and it was positive I can't remember...