Search results

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

  1. M

    UC diagnosis?

    Thanks for that perspective Keepingfaith. Can you tell me about your drug induced lupus experience that I note on your signature? Is that something that went away upon discontinuing Remicade? Any problem with Humira, or any benefit for that matter? Also, how do you take sulfasalazine, and...
  2. M

    New research has found a substantial and sustained increase in cases of childhood inf

    Interesting. I used to eat canned peaches, pears, etc. every day as a kid. I don't know whether the cans I ate used heavy syrup or sucralose. Now I wish I knew which kind I ate. It would be interesting to know. Otherwise I'm not finding many products with sucralose, other than diet soft drinks.
  3. M

    UC diagnosis?

    Hi, I've had Crohn's in my terminal ileum for about 30 years, and have had a couple of surgeries for it. Recently however I've developed pain in my lower left side which has persisted for about 6 months. I had an MRI enterography followed by a colonoscopy. Neither of them showed anything...
  4. M

    A Potential ’Curative’ Modality for Crohn’s Disease

    Very interesting, although the author for all of these articles is the one and the same Robert E. Click, who apparently holds the patent for Dietzia.
  5. M

    New treatment options showing higher response rates than anti-TNF drugs

    kiny, do you have any more specific info regarding the derivative drug and/or trials which caused deaths? I was just trying to look into this since I'm not familiar. kiny, correct me if I'm wrong, but having poked around on the internet, I'm now inferring that you're meaning to say that...
  6. M

    Thought I would share this…SSI Vaccines

    Question for David - as I read the writeup from the Qu web site about how this SSI works, it does not sound like the kind of immunotherapy a person does when they go to their allergist to be treated with SCIT (subcutaneous immunotherapy) for allergies, such as dust mites, pollen, etc., where the...
  7. M

    New research has found a substantial and sustained increase in cases of childhood inf

    Just incredible - 90% increase in 10 years. There's got to be a smoking gun there for some smart sleuthing types to figure out. I wonder if there's some kind of microbe in their dairy unique to their geography. I tried Kerrygold cheese recently (Irish grass-fed cheese from Whole Food Market)...
  8. M

    CLA for Crohn's and Colitis

    I tried the natural way of buying grass-fed milk and Kerrygold cheese (grass-fed cheese from Ireland). The cheese made my gut hurt bad every time, even eating tiny amounts. This, in contrast to my high reliance on my local pizza purveyor to supply me with lots of pizza which is the most benign...
  9. M

    Chat Live with Scientists about the Microbiome - Now

    Judith, did this conversation take place on twitter or on this web site? Is there a way to be notified of things like this in the future ahead of time? Is this the first such conversation? Any others planned? Thanks!
  10. M

    Thought I would share this…SSI Vaccines

    I looked on the Qu web site. It talks a little bit about how it works, and has some pictures of macrophages. It's talking about how it works for cancer, so I don't know if the same process would hold true for Crohn's or not, but here it is. Pretty interesting. I emailed the company asking if...
  11. M

    Some are looking to find what we should really be eating!

    Interesting. I like the approach they're taking. Another new source of news for me to follow. Thanks for sharing this!
  12. M

    GSK1605786 ('786) Drug trial Phase 3

    Hi Shane, I'm still on prednisone. I did not qualify for the Traficet. I'm hesitant about Humira, just imagining I'll get a bad infection or cancer, etc. For some reason I'm allergic to AZA & 6mp now. Humira may be my next option. We'll see. Are you thinking of trying a biologic? Ever...
  13. M

    Self-Prescribed Fecal Transplant Saves Canadian Man's Life

    David, is there something else that this procedure is beneficial for other than C Diff?
  14. M

    Etiology of inflammatory bowel disease: A unified hypothesis

    You're a gem Judith, thanks for sharing your thoughts! The thing that I ponder the most regarding IBD is what the environmental variable(s) are. I want to know what the environmental variables are so that future generations don't have to suffer this disease. And I find it surprising that...
  15. M

    Etiology of inflammatory bowel disease: A unified hypothesis

    I came across this research report on pubmed, in which the author outlines a hypothesis that artificial sweeteners saccharin and sucralose are responsible for IBD. I've posted the abstract below along with the link for the full text or pdf if you prefer. I thought this was an interesting...
  16. M

    Trouble diagnosing left-sided pain

    I have Crohn's and had two surgeries at my terminal ileum some years ago. A couple months ago I suddenly developed a good deal of LEFT-sided pain with cramping and gurgling. This was new and different from what I'd experienced for the last 30 years of Crohn's. Normally I simply have pain at...
  17. M

    Bread, wheat, gluten, scd question

    I know there are schools of thought that say that gluten is bad and that the SCD should be followed. Just a quick question for those of you who are up to speed on the whole wheat/gluten/SCD school of thought, because I'm not Is there any good explanation for why I would feel good eating pizza...
  18. M

    6mp low blood pressure reaction

    I'm trying 6mp at my request to my GI. I had bad reactions to AZA recently when I tried to restart it after being off of it for several years (nausea/headache), and couldn't get above 25mg. Now up to 25mg on 6mp a few days in. And tonight feeling the most unwell so far. Checked my blood...
  19. M

    remission for 17 Years And Counting

    Crabby, if you happen to read this sometime, would you mind clarifying your month-long ordeal with post-op infection of your resection site & gauze-packing? Are you talking about an internal infection, inside your abdomen where your bowel was resected or do you mean your incision where they...
  20. M

    Lower LEFT quadrant pain

    Hello, I've twice been resected at my ileocecal/colon region due to CD, which is lower RIGHT quadrant. Now for the past 2 months I've had pain in my lower LEFT quadrant. This lower left pain seems to have come on pretty quickly. Nothing shows up on MRI enterography and recently my GI did a...
Back
Top