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I was really impressed with my first trial of Modulen. I had purchased 8 cans from Canada, and they lasted me about 10 days I think. I noticed pain relief within a couple hours of drinking it. After about a week I had very little pain. And this was even with drinking it on the side while...

This is a lot of great info Dusty, thanks so much for digging it all up and posting it!!

I was able to order the Modulen from London Drugs in Vancouver, B.C. and it only took them 1 day to get the order in. So I drove up there today and picked up 8 cans to try it out and see if I can tolerate it and see if I could get it across the border without any hassles. The border guard I...

Thanks Twiggy, actually what I meant by asking about how long one can of Modulen lasts is how many days will one can last if I use it daily. Does one can last for one day or for one week or one month? I guess what I should say is how many servings are in a can, and how many servings does a...

That might work Twiggy. Thanks. I called the guy & he said he'd set me up, we'll see if he actually does. Anyhow you're a great helper! Not sure where to source the flavor packets. Can anyone confirm how long one can of Modulen lasts?

I just called the Canada Post Office in Vancouver. They won't do a po box for me since I can't provide them with a Canadian physical address. Nice thought. I'd like to see if anyone in Vancouver sells the Modulen. Sure don't see any indication on the web. And the Nestle Canada phone numbers...

How would I get a po box up there?

Thanks Twiggy, I just called the Specialty Shop in Toronto and they say they won't ship outside of Canada. If anyone comes up with ideas for Vancouver, please let me know.

I used to drink Peptamen OS 1.0 before Nestle discontinued it. Too bad because it tasted quite good and their other Peptamen products they sell taste horrible to me, so I'm now in search of a new EN option. The Modulen sounds interesting, particularly with the anti-inflammatory component. I'm...

Is LDN ok to take with prednisone? It's not ok to take with an imunomodulator, right?

I used to take AZA from 2001 - 2003, and then quit taking it. I've tried to resume taking it but it makes me really nauseas and light headed, just all around unwell. I've tried it even as low as 12mg, but no luck, it makes me ill. Anyone ever heard of that - taking it fine for a while then...

I was diagnosed with glaucoma at age 39. This is an eye disease which eventually robs the person of their sight/causes blindness. Now at age 45, I've already got noticeable vision loss in one eye. I've wondered if my past prednisone use may have been responsible for my glaucoma. It's rare...

What about a subforum for drug trials of new meds?

Hello, I have a meeting with my GI next week. He has suggested that I may consider trying a new drug trial run by GlaxoSmithKline. It is a phase 3 trial for a drug they've termed GSK1605786 (referred to commonly as 'GSK786'). I received some literature about it, noting that it was tested on...

I don't know the answers to your questions, but has any dr. ever suggested that the Humira caused the prostate cancer? Not that I've ever heard of any such relationship, just wondering though.

Big Red, how has your Humira been working out? Did you have your appointment and get some feedback from your doctor? I wonder if switching to Remicade or another drug would be advised.

Thanks Mr. Ziggy. I've left a message for Kristine. I'd like to know more. I have United Healthcare. Thanks for sticking with this thread.

I think I would be more interested in trying the allogeinic transplant than trying biologic meds. Seems like skipping over the biologics and going right to the potentially long-term solution would be ideal. I was looking on the clinical trials site and if I recall correctly, I think there were...

From what I've been reading, it seems like the risk is increased on combination therapy (ie - including a biologic [Infliximab predominately from my readings] combined with steroids or an immunosuppressant, like Imuran), and for young males. And then there is the real nasty cancer, called...

Is mucositis a key risk for the stem cell therapies being done in the Crohn's trials now? I was reading on a cancer site about mucositis being a key risk of bone marrow transplant, but it also mentioned radiation as part of the regimen; I don't think there is any radiation involved with the...