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  1. SarahD

    Colonoscopy during menstrual cycle

    I hope the timing all works out ok, let us know how it goes x
  2. SarahD

    Hospital food around UK

    A friend of mine told me that her dad was given food containing gluten despite him having Coeliac disease, and to top it off the dietitian he was under told him that it was fine for him to eat it. Shocking! I was in Addenbrooke's recently and I only had one meal, which was gluten free rice...
  3. SarahD

    Colonoscopy during menstrual cycle

    I was on my period for my last scope so I used a tampon and had no issues from the procedure. If you're worried the best thing to do would be to call the unit where you're having your scope and ask if it's likely to be a problem. And you can always reschedule if you think you'd be more...
  4. SarahD

    So im in remission?

    I've had the fecal Calprotectin test funded by the NHS twice now. Not all centres offer it, but it's got to be worth asking for.
  5. SarahD

    So im in remission?

    What is it with IBD specialists thinking that a normal CRP = remission?! This is a pet-hate of mine. My CRP is nearly always normal and is often <1 despite the fact that I'm in a really bad flare. I met a new consultant a few months ago who thought I didn't have any inflammation (based on my...
  6. SarahD

    Vitamin D and vivid dreams

    Update: I stopped taking my vitamin D supplement, my last dose being on 16th August. I went to sleep on 17th Aug and to my surprise I did not have a bad dream, and haven't had one since. I'm surprised that the weird dreams stopped so quickly to be honest, but I'm not complaining as I'm sleeping...
  7. SarahD

    How do people go on with full time work?

    If I could afford to work part time and my boss would let me then I would, definitely. There's no shame in working part time, try not to worry what other people think and do what's right for you x
  8. SarahD

    How do people go on with full time work?

    Ugh, that doesn't sound much fun :( Are you going to continue looking for another job or just concentrate on getting better?
  9. SarahD

    Treatment for bone pain/osteopenia? Alendronic Acid?

    I'm not sure, I didn't know it was a problem. I was told not to take my calcium supplement on the day when I take Alendronic acid as it won't be absorbed, but the rest of the week I'm allowed to take it as normal - so perhaps it's something to do with that? Also if someone has osteopenia or...
  10. SarahD

    Treatment for bone pain/osteopenia? Alendronic Acid?

    Hi Nicola, I started taking Alendronic acid about 6 weeks ago as I have osteopenia (most likely caused by pred, I'm 25) diagnosed with a DEXA scan earlier this year. I take one 70mg tablet on the same day each week and have had no problems with it so far. You're supposed to take it on an empty...
  11. SarahD

    Vitamin D and vivid dreams

    I've had the occasional vivid dream before, but nothing even close to the extent that I've been having them since I started my vitamin D supplement and never knowingly related to any medication I've taken. I've decided to stop taking the supplement after another awful dream last night. At...
  12. SarahD

    Vitamin D and vivid dreams

    Thanks Beach. I'm using D3 as I read that it was the better of the two types to take. The UV light treatment - wouldn't that increase the risk of skin cancer? I'm on Azathioprine and was advised to limit my exposure to sunlight without using a strong sun cream (hence I thought the vitamin D...
  13. SarahD

    Anti-MAP treatment works! Questions about Rife machine and fecal transplant

    Sorry to hijack your thread Crohn's girl! Kev, I think I was being a bit unfair. I'm sure there would be a lot of GI's who would truly want to offer us a cure if one was discovered. My doctors are really passionate, they see the suffering and the frustration when you have to choose between the...
  14. SarahD

    Vitamin D and vivid dreams

    Thanks everyone for your responses. It seems like this is an unusual response to vit D but I honestly can't think of anything that could be causing the weird dreams. Last night I dreamt that I was at a family gathering when a pack of wild cats attacked. We all ran inside the house but it was...
  15. SarahD

    Anti-MAP treatment works! Questions about Rife machine and fecal transplant

    I guess that's true Kev, but it could also put doctors out of a job. With no IBD patients to treat the would need far fewer GI's...they'd be shooting themselves in the foot to offer us a cure.
  16. SarahD

    How do people go on with full time work?

    I've had terrible luck this year, I was signed off work for a week because of dangerously low potassium levels (caused by pred), then the day before I was due to return to work I was heading to my GP surgery for a blood test to check on my potassium levels again, feeling so much better and...
  17. SarahD

    Vitamin D and vivid dreams

    Thanks both. I made the same connection with LDN Dan - do you know how long it takes for the vivid dreams to go away with LDN? I'm going to persist with the vitamin D but if it doesn't resolve then I will either stop taking the supplement or will discuss it with my doctor to see if I can get my...
  18. SarahD

    How do people go on with full time work?

    Like bbizzowers I try not to let Crohn's beat me. I spent 4 years at uni so that I could do the job I wanted, and I've now been working for 3 years and am doing really well in establishing my career. I've been battling my worst flare for 2 of those last 3 years and there have been times when...
  19. SarahD

    Help please impossible. Azathioprine and Mineral Deficiencies

    Feel better soon, the IV should help a lot x
  20. SarahD

    Vitamin D and vivid dreams

    I recently started supplementing with vitamin D after reading a lot of research suggesting that it was beneficial in Crohn's Disease. My vit D levels were tested last autumn and were in the normal range but towards the lower end. So I started supplementing with 4000ui each day with my evening...
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