Search results

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

  1. SarahD

    Crohn's in a wheelchair

    Welcome to the forum Tootsie! Can I ask why you use a wheel chair - is it because you have problems walking/standing or are generally lacking the energy to walk/stand? I used a wheel chair for a short time just before being diagnosed. I was 13 at the time, so my parents used to push me...
  2. SarahD

    Is adding Imuran or 6mp to Humira more dangerous?

    That's news to me ngng, can you provide a link to the study? It sounds like an interesting read and something I would like to know more about. Thanks, Sarah
  3. SarahD

    Is adding Imuran or 6mp to Humira more dangerous?

    Combination therapy can also have benefits, in that it helps to prevent your body building up resistance to Humira, making some types of reaction less likely to happen. So whilst it can lower your immune system further than single therapy alone, it's not all disadvantages.
  4. SarahD

    Tips on keeping nausea down?

    When I suffer from nausea sometimes sucking on a hard boiled mint really helps. I haven't found anything else that works as well as that.
  5. SarahD

    What is your worst Side effect from pred?

    Pred causes me to develop hypokalemia, or low potassium. It makes me feel absolutely dreadful, my heart races, I have no energy, I can't think straight, my finger tips swell up...it can be life threatening if left untreated, and in my case we had to treat it quite aggressively to get my...
  6. SarahD

    Scared!! Osteoporosis at 36 :(

    Try not to panic! I have osteopeonia diagnosed when I was 25. In my case I had been on low dose steroids for several years and had low calcium intake in my diet, so both were contributing factors. I now take calcium and vitamin D tablets 6 days a week and a bisphosphonate (alendronic acid) on...
  7. SarahD

    MAP Vaccine Ready for Human Trials - Could be Used for Crohn's

    That really is amazing news! Any word on eligibility criteria and how many people they will be looking to recruit?
  8. SarahD

    I was admitted.

    Could you try enteral nutrition? I was put straight on that when I was admitted to hospital with a suspected blockage, and I was sent home on a liquid only diet so that foods could move through my gut easily. It wasn't fun, but then neither is having a blockage! It might just mean you can go...
  9. SarahD

    Vedolizumab approved for Crohn's in the UK

    Drug hope for Crohn's patients: New treatment is first to work in the gut to target symptoms on the disease http://www.dailymail.co.uk/health/article-2736278/Drug-hope-Crohn-s-patients-New-treatment-work-gut-target-symptoms-disease.html
  10. SarahD

    Nothing tastes good, don't want to end up back in hospital

    Do you have a slow cooker by any chance? I make a nice mild curry in mine, using coconut milk and curry powder for the base and then I use potatoes, chicken and mushrooms in it, although you could use pretty much any meat or veg that you like and which agrees with you. If you use full fat...
  11. SarahD

    If you're on diets like SCD, paleo, etc., how do you manage in hospital?

    That's great news UnXmas! When I was in hospital at Addenbrooke's I was on the Lofflex diet. The hospital had a separate booklet of special foods for people on diets like gluten free, dairy free, low salt, etc, which I could choose from. In the end though I only had one meal (breakfast) which...
  12. SarahD

    Calling Out Sick from work

    I too feel really guilty when I call in sick. I've learnt that my health is more important than my work, and a day or two here and there isn't going to hurt my employer as much as it helps me when I'm sick. That said, sometimes it's good for your mental health to push yourself and go into work...
  13. SarahD

    Post-surgery body changes

    p.s. Welcome to the forum!
  14. SarahD

    Post-surgery body changes

    I haven't had surgery so I'm not sure of the answer, but wanted to suggest that maybe it's to do with your muscles being cut with the surgery. If you had open surgery they would have had to cut through your muscles, leaving them weakened. It may be worth asking your surgeon about.
  15. SarahD

    Treatments for strictures?

    The main options for a fibrotic stricture are balloon dilation, strictureplasty or resection. Some strictures can be managed with a low residue diet too. I was set to get a balloon dilation last year, only my supposed fibrotic stricture was nowhere to be seen when the dr got in there. This kind...
  16. SarahD

    Calprotectin Results advice please

    Welcome to the forum MSP. Sorry to hear about your problems. 54 for a Calprotectin result wouldn't cause me to worry at all. I'm not sure how accurate the Calprotectin test is, and am sure there are some cases where it will give false negatives. If I were you I would push for a colonoscopy and...
  17. SarahD

    Rifaximin- SIBO

    I wonder if you could be experiencing bacterial die-off. It can cause some unpleasant symptoms like diarrhea and bloating. Antibiotics in general are well known for causing diarrhea. It's bad to stop a course without finishing it as you could develop antibiotic resistance, where the bacteria are...
  18. SarahD

    Best media for the hospitalized to kill time?

    I enjoyed watching The Walking Dead and Supernatural. Both are series, are there are loads of episodes to watch for Supernatural.
  19. SarahD

    IBD-AID: An anti-inflammatory diet as treatment for inflammatory bowel disease: a case series report

    An anti-inflammatory diet as treatment for inflammatory bowel disease: a case series report Abstract Background The Anti-Inflammatory Diet (IBD-AID) is a nutritional regimen for inflammatory bowel disease (IBD) that restricts the intake of certain carbohydrates, includes the ingestion of pre-...
Back
Top