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  1. kello82

    How common is a Colostomy with Crohns?

    ethan you could deal with it. dont ever doubt that you arent strong enough to handle something. k? eveyone pretty much covered the technicalities here, an ostomy is usually one of the latter options one is faced with. for me, i had no other options left literally so thats where mine came in...
  2. kello82

    Were you diagnosed as a youth; I'm scared ****less for my son...

    hey! so the appt was today? how did it go? just curious. i was diagnosed when i was 9 and i am now 20. i have also tried the SCD! sorry to say that i didnt have success with it, i ended up losing a lot of weight and had to trade the diet for just nutrition. but i dont think it was all the diet...
  3. kello82

    New here, 20, started in march(ish)

    hey matt! im 20 as well wahoooo do you keep a food diary? that might help, though it sounds like you do a really good job at keeping track. keep in mind though that in some cases, diet makes no difference in the activity of the crohns. it seems to be a highly individualistic thing, some people...
  4. kello82

    When its a struggle to drink water- Any suggestions?

    i have had crohns ulcers in my esophagus and stomach before, which makes it very painful to eat or drink ANYthing, even just water. maybe you could have a similar thing going on? the only other time i had such a terrible time trying to eat/drink was when ive had c-diff. different kind of pain...
  5. kello82

    When its a struggle to drink water- Any suggestions?

    hey dancer, where does it hurt when you eat/drink? i mean you say it hurts going down, how so?
  6. kello82

    Neuropathy from Flagyl (Metronidazole)

    hey there, yep same thing happened to me except it was casued by IV flagyl that i was on for a really long time. started out feeling like my toes were numb and spread. if someone touches your foot it is freaky right?! you can feel it but not in a normal way and ughhh i just remember spazzing...
  7. kello82

    Pain medication and addiction in Crohn's Disease

    hey ok so the past week or so i have been taking about 1 5/325 perc a day. which is great! the pain has not been affecting me as much, before this some days i was taking up to 3 tabs. but thing is that the past week my mood has been very weird. not depressed cuz i am actually quite more...
  8. kello82

    Surgery Time

    hey! sorry i wasnt really clear i meant like, the medical community in general does not know too much about PG. its not totally understood as to why and how it works, just like crohns i mean really there is a lot they still dont know. but the knowledge that IS out there, my docs know. so they...
  9. kello82

    Surgery Time

    hahah love your usage of the 34938020 in there HAH! i really should put them side by side.....will work on that. yep youre correct ive been off the major pain meds, the fentanyl, for a few months now!still take a few 5/325 perc a day and i mean some days its bad and hurts no matter what and...
  10. kello82

    Surgery Time

    as far as when? no way to predict that really. its kind of just up to my body to heal the wound and to NOT revert back to doing damage. the reason it takes so long is because literally, it is one cell at a time. that top layer of healthy good skin that needs to form, it cant just appear, it has...
  11. kello82

    Surgery Time

    thanks everyone! i honestly cant even tell for myself if it is better or worse. its like better in some ways and worse in others you know? haha so nobody feel bad about not being able to tell LOL cuz i see the damn thing every day and i cant even make a call on it! either way, your guys' (mbh...
  12. kello82

    Surgery Time

    heres the latest pic, from yesterday. i quoted my last pic post for comparison here, which i guess was a couple weeks ago? hmm i thought it showed the date of the post you quote but in conclusion, the FIRST pic is the previous pic i posted in this thread, the 2nd pic is from today. :D
  13. kello82

    Our Child Diagnosed; What's next...

    hi there! and welcome =] i was diagnosed at 9, like so many others on here who were diagnosed as kids. hopefully youll find some great help and info here to help your kids thru it all! as well as support for yourselves. can i ask what area you live in? maybe we can help you with some...
  14. kello82

    Surgery Time

    thanks guys!!! :) MBH i had a GI appt on tues so i mentioned it then and he gave me a script for an xray so well see what that says i guess? dunno really. but yeah overall not too bad is pretty dern good =] silver yeah youre totally right walking hunched over after surg makes your back hurt a...
  15. kello82

    Prednisone

    haha for me it was like total opposite. pred weaning gave me wicked migranes and fever were the worst things. for me narc withdrawals did give pain as well, bad muscle pains esp in my legs and calves. not the worst symptom tho, but still present. i guess conclusion is that everything is just...
  16. kello82

    Prednisone

    yeah you will be ok now! the thing is that when you take pred for like over a week i think? your body STOPS making its own corticosteroids. so going cold turkey on the pred will not give your adrenal glands the time it needs to start functioning again. hence the need for taper. but seeing as...
  17. kello82

    Honestly!

    haha this i know!! didnt mean for it to come across as such a generalization, just suggesting what i see as possible common reasons for what guys as well as just people in general might say and do. not a fan of generalizations myself, they annoy me too ;) hahahah
  18. kello82

    Surgery Time

    felt like it was time to update plus i just had a major thought SO atm, things are kind of stagnant. the PG isnt really healing, but its not exactly active either. its a little back and forth, new patches of good skin pop up and then new raw holes pop up. went to the derm last week and had to...
  19. kello82

    Incontinence Pads

    ive crapped my pants 83259028358907238940283 times. but for me i rarely had diharrea so i never really had quite the same dilemma, just a few period pads were ok most of the time. regardless of the solution you find, my saving grace many times was a sweatshirt or jacket to be tied around the...
  20. kello82

    Honestly!

    yeah people are just stupid. i mean im sure he cares for you and doesnt want to see you sick? i get the feeling you wouldnt be with him if he didnt lol. but just idk i guess some people dont know how to handle it when faced with SUCH bleak reality. so many complaints in life are easy to just say...
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