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Crohn's Disease Forum

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  1. tots

    Remicade question

    I have bad headaches too, I blame mine on my Remicade. Did not know Iron could do that. Lauren
  2. tots

    I have the Crohn's sub type SCAD. Anyone else???

    I have never heard of it but, will be looking into it as I don't respond to treatment the way the Drs would like. Although Prednisone and Enotocourt stop they symptoms while I am on them. Lauren
  3. tots

    At what point do you just switch your GI up?

    I just "interviewed" a new Dr tis past week. Every time I have a treatmeant plan with my Dr he switches it up, meaning backs out of what we are going to do. I am beyond frustrated. On the other hand, what will I have to do to prove to this new Dr I have CD? I say, do it before you go bald...
  4. tots

    Back pain---Muscle or Joint???

    Pottytime- How did they determine the back issue was from your CD? I have two discs in the area of my back pain, my finger are crooked ( like RA) mu GI and GP both say my hands look like RA. MY ANA is only slightly high. MY GP says with Remicade it shouldnt be high at all. Very overwhelmed...
  5. tots

    Waiting for biopsy results

    if there are significant findings your dr will know much sooner than 10 days. I worked for a GI and results can be called into the Dr rather quickly. For a biopsy they are really just looking at tissue on a glass slide. Good luck and I hope everything works out well- and for all of us that...
  6. tots

    Neuropathy?

    I have it in one of my toes. Its a bit of a bigger area now than it was a few years ago. I am pretty sure its from my VIT D levels being so low. Lauren
  7. tots

    Fingernail growth/shape and Crohns'.....

    Seriously, for the amount of $$$ I spend at the Dr I learn more here than I ever do at the Dr. Why if there are common thongs CD or UC patients have, why does my Dr not use a check list of questions. How do I know to tell him all these things? I didn't know this was related!! I guess you have...
  8. tots

    This is a joke right?

    Julie- I had my Endoscopy yesterday- 5 tiny (?) polyps removed from my stomach, gastritis ( i am already on a medication for that) and Barrettes (?) Esophagus. He took biopsies and will let me know next week. My family Dr said with my medication I shouldn't have any gastritis. I am going to...
  9. tots

    This is a joke right?

    I have an appt with a new Dr in September. woking forward to it. Thank you for the kind words Ron! Lauren
  10. tots

    This is a joke right?

    I know that, but- but my dr does not buy into the Diagnosis.. I have no other coping skills right noe! Lauren
  11. tots

    This is a joke right?

    in 2012 I was in the hospital for my CD. Colonoscopy found skip lesions in the colon ( left sided colitis, Crohns Colitis). Biopsy showed ischemic colitis) bowel. Otherwise "normal". Small bowel series showed CD beyond the reach of the scope. As I was already diagnosed this was enough for the...
  12. tots

    Worsening Pain. Help Please.

    I am sorry your having a bad time. Lauren
  13. tots

    Rectal mucous: Solutions?

    I am sorry if that came across grouchy, its been a long day!! Lauren
  14. tots

    Rectal mucous: Solutions?

    He said he didn't find any evidence of active disease, so he not sure about the mucus, cramping, diarrhea or joint pain. I am pretty sure there is not a lot more I can handle right now, my life is a *&%$ show right now and feeling like I am begging for medical care is not helping. Between my...
  15. tots

    Can I stop colonoscopy prep if

    I took 4 Dulcolax two hours before starting my prep. It was a rough night and I am glad its over! Lauren
  16. tots

    Can I stop colonoscopy prep if

    Hi Ron Last week with the prep, i felt like the Gatorade has trouble passing a cortinn area. Kind of high up, I am having the same pain tonight, I are an apple today and in my case an apple a day does not keep the need for a Dr away. I may be crazy but it does feel like a slight- if there is...
  17. tots

    Can I stop colonoscopy prep if

    Thanks Ron- I can hardly walk. Never again
  18. tots

    Can I stop colonoscopy prep if

    Is it supposed to hurt this bad? I just started my prep and the pain is unbelievable Lauren
  19. tots

    Rectal mucous: Solutions?

    I too and in my third decade of diagnosis, and am having the same problem. I have a colonoscopy on Tuesday. I will let you know what the Dr says. Annoying to say the least tots
  20. tots

    What would you like people to know?

    Exactly looks can be deceiving Having worked for a GI before I was diagnosed I feel confident a lot of us downplay our disease, meaning we don't make a big deal about it, we handle a lot on our own. Many people don't have a strong support system and in fact probably not a lot of us have people...
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