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Crohn's Disease Forum

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  1. My Butt Hurts

    Average number of pills taken for Crohn's Disease

    Before my Crohn's diagnosis, I never took pills. I wouldn't even take a Tylenol for a headache. Once I started taking sulfasalazine and realizing that it made me feel better, I quickly got over that. I think that the most ever had to take in one day was 18, but I swear I'd rather take 50...
  2. My Butt Hurts

    I'm proud of myself today because......

    I'm proud of myself because I got on the treadmill last night for the first time in at least 6 years I think. Before starting Humira then Remicade, I weighed 96 pounds. I needed to gain back 40 pounds to be at a healthy weight. I weighed 156 yesterday morning, lol! A bit more than I wanted...
  3. My Butt Hurts

    Remicade Club Support Group

    Ha! I got home and my husband had the kids pick me out some flowers from the store with glitter on them. Glittery flowers for my Remi! Hope they can get your level up to help you out, 2thFairy.
  4. My Butt Hurts

    What you have for breakfast

    When I was flaring I would drink a glass of Carnation Instant Breakfast mixed with soy milk. Probably any of those supplement drinks would work if you think they would sit well in your belly. It was always enough calories to last me until lunch. Lightly salted pretzels always sit well in my...
  5. My Butt Hurts

    Remicade Club Support Group

    Getting infusion #16 right this very second. Whoop whoop! I wonder if there is a prize for infusion #100? Dear Remicade, Please keep working, thanks. Love, MBH
  6. My Butt Hurts

    Does Remicade make you more susceptible to illness?

    Hi Steph, welcome to the forum. I guess everyone is different on their take on this subject. Some of us are sick all the time now, and some of us see no change. I haven't gotten any sicker than I used to, and I've been on Humira or Remicade for 3 years now. I think it's normal for most people...
  7. My Butt Hurts

    A Good Doctor for Crohn's in Portland, OR?

    Drew lives near Portland and goes (went?) to Dr. Knigge. He was very pleased with her determination to figure him out. http://www.healthline.com/doctors/gastroenterologist/kandice-knigge/3720529
  8. My Butt Hurts

    Crazy-ass hair side affect?

    My pin straight hair has gotten wavy in the past few years, but I think it started before Humira or Remicade. My ass-hair has not gotten wavy.
  9. My Butt Hurts

    Jane's Taco-Filled Pasta Shells

    You could also use flour tortillas instead of corn, and bake them in the oven if you are missing that taco crunch. You'd have to rig something to shape them, but be creative. Maybe an elevated grate and hang them over for the right shape? YOu can put them over a small glass bowl to make taco...
  10. My Butt Hurts

    CCFA Camp Oasis anyone?

    Here's an old thread from one of our members who has been to Camp Oasis. I think she was a high school junior or senior at the time. http://www.crohnsforum.com/showthread.php?t=6378&highlight=camp
  11. My Butt Hurts

    How well is Humira working for you?

    My Humira remission only lasted for 4 months. It sure was great while it lasted though. My insurance company denied weekly shot so I had to switch to Remicade, which is working just as well.
  12. My Butt Hurts

    Prednisone decrease question...

    Yeah, I second what Ames said. You could also ask to stay on whatever amount you are at for two weeks instead of one, before you taper again.
  13. My Butt Hurts

    I thought steroids would help.

    My doc said he wouldn't put me on entocort because it isn't strong enough. Prednisone always started working for me within days of starting it. I do think you might need to be on some other maintenance med as well. Did your doc say that you would need to stay overnight for Remicade? I've...
  14. My Butt Hurts

    Taking Advantage?

    I've never once faked anything having to do with Crohn's. It just feels like lying. I don't get why people have to explain themselves about what they eat or why they don't want to go out. I do as I feel. I must have some very understanding people around me.
  15. My Butt Hurts

    Marijuana Discussion

    Because marijuana is illegal in many places. Also, little ones can be browsing the forum. While I'm here, I'll take the password please =)
  16. My Butt Hurts

    Suppressed immune system...getting sick

    The average adult gets 3 or 4 colds per season. There are a few really nasty viruses going around right now. 3 out of the 4 people in my family just had a terrible hacking cough that lasted more than a week. We're all fine now without seeing the doc, but it seems even simple colds make us...
  17. My Butt Hurts

    Pitta pizzas

    Yes! We make these a lot! We use the thicker pitas, not the thin dry ones. I think they are used more for folding rather than in the pocket. I use ranch dressing as a base instead of tomato sauce, and boiled chopped chicken with celery and bbq sauce. ANYthing tastes good on it!
  18. My Butt Hurts

    First Colonoscopy tomorrow...

    Yeah, it's not scary at all. Like everyone else said, the worst part is the prep. The best part is whatever you eat afterwards! Good luck tomorrow, you'll be fine =)
  19. My Butt Hurts

    Had My Resection Done.... (Pic!)

    Awww, recoveries do suck and it's only been two days for you. I'd honestly give it two weeks before you get any relief from incision pain (for my much smaller surgeries, anyways.) I hope you get some relief from your throat pain really soon, and fast healing. Glad you made it through okay.
  20. My Butt Hurts

    Redness and burning in anus

    I second CDDad. Calmoseptine is pink butt power in a tube. It not only protects, but it soothes. It's not prescription, but you still have to ask for it at the pharmacy and they may have to special order it for you. I use it almost every day. It's wonderful.
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