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  1. My Butt Hurts

    Humira before Azathioprine or 6mp?

    I went from pentasa straight to Humira. I think Imuran typically takes about 3 months to kick in, if at all, and my doc didn't want to chance it. Humira started working for me 6 days after the first injections, it was amazing.
  2. My Butt Hurts

    Humira side affects

    That's a very bold and risky statement. I think it's fine to tell your story, and what may or may not have happened to you because of your meds but to deter others from a potentially life saving treatment is wrong. I was a walking skeleton before starting Humira and do not regret one second of...
  3. My Butt Hurts

    Would you come back again (reincarnation)?

    I'd come back and do everything exactly the same. (So far anyways.) Yeah, it's hard sometimes, but I'd do it all over again. Crap my pants in public, ass surgery, everything. Even my miscarriage (worst week of my life) made me what I am today. I'd want nothing to change. Well, maybe I'd...
  4. My Butt Hurts

    So tell me, does *your* arse leak?

    I have to LOL @ your signature.. "dreadnisone". I 3rd the Calmoseptine, it won't help with the leakage, but makes a great barrier, and it very soothing and will heal your chaffed skin overnight. I was leaking mucous when I was flaring, and I tried doing rectal kegals. Not even sure if it...
  5. My Butt Hurts

    Do I have to start at 40mg of prednisone?

    I think that is a normal dose to start at. My doc said he would never start me lower than that.
  6. My Butt Hurts

    Danman, my story

    DAAAAANMAAAAAN!!!!! For sure go with the new doc! Glad you are feeling well, and good luck with your surgery. I hope that first option works for you. MBH
  7. My Butt Hurts

    Humira vs. Remicade

    I have also been on both. I can't say that Remicade gave me faster results. I started Humira and noticed a change on day 6 after the first injection. I was in an quick awesome remission, but it started failing after only 4 and 1/2 months, and my insurance denied me going weekly. I started...
  8. My Butt Hurts

    What do you define remission as?

    For me, remission is being able to live as normally as I can. I consider myself to be in remission right now, but never for one day forget I have Crohn's. I don't think I will ever be completely normal, but right now I am at about 97%. My worst symptoms are controlled right now, thanks to...
  9. My Butt Hurts

    Crohns and heart problems?

    The only time I had problems with my heart since I've been diagnosed, was because I was also hyperthyroid at the same time. That made my pulse higher, and I had to take a beta-blocker to slow it down. It happened for two different periods of time with no real explanation why, and went away on...
  10. My Butt Hurts

    Take Steps

    I've been two years in a row and plan to go again this June. It was more fun than I thought it was going to be, and I was almost in tears in awe at the first one. I just couldn't believe how many people were out supporting their friends and family members. In 2009 I raised $1,555.63 and wore a...
  11. My Butt Hurts

    Questran Users

    I have never used it, but if I remember correctly, I heard that it just rips the calcium from your body in crazy amounts, so you will need a good amount of supplementation. (Don't just take my word for it though, look into it.)
  12. My Butt Hurts

    Vaginal pain

    Is it worse when you are standing? I had a tugging sensation in that area, and it felt like my vagina was going to fall off. I didn't think it was related to Crohn's, and I had it checked out at the gyno office, but it wasn't a prolapse. I did some kegel exercises and it went away. I'm still...
  13. My Butt Hurts

    Questions about remission and food

    I've been in remission for two years now on Remicade, and I am still careful what I eat. I will never eat popcorn again as long as I live. I still skip raw onions, and apple cider. I can eat most other things in moderation. I can eat a handful of blueberries, but I ate a 1/2 pint the a week...
  14. My Butt Hurts

    Remicade Club Support Group

    Holy crap! I have posted 89 times in this thread. I had my 15th infusion today! I am still at 8 weeks apart, and 400 mg. MY NURSE TOLD ME THAT I HAD A DEMI MOORE LOOK GOING ON!! Yes, I just shouted that. I think I love her, and I might request her next time too! (giggle) I had to sign a...
  15. My Butt Hurts

    Injecting into Stretch Marks

    The only thing I can guess is that if the stretch mark is deep, maybe it won't be a tight enough seal and some medicine might leak out? "It says don't do it, so don't do it." is hardly an answer, but it makes me laugh.
  16. My Butt Hurts

    Does pentasa/asacol really work?

    I believe those work better for people who are experiencing mild symptoms. Sulfasalazine was the first drug that I was on, and it did keep me in remission for quite some time. (I don't remember if I was on pred when I started it, but that would make sense as it kicked me into remission pretty...
  17. My Butt Hurts

    Mexican Food

    Same here. I can handle Mexican food when I'm in remission. I'm not sure if this will help satisfy anyone's Mex cravings, but I make a very simple dish that you could easily substitute out any of the ingredients for. I call it chicken enchiladas, but it more like a messy burrito casserole...
  18. My Butt Hurts

    Car with toilet

    I didn't use mine that much, but I did have it in the back of my minivan just in case. It was just a kid's training potty, and I lined it with a double plastic shopping bag with 2 folded up paper towels in it (made 8 layers). It really came in handy when experiencing a bad flare and traveling...
  19. My Butt Hurts

    Any help would be great

    Well, the directions for the prednisone are just to start at a certain amount, and to taper, but if he's already been on it, then you probably know how to do that already. Yeah, caffeine can stimulate the bowels, so it'd be a good idea to cut that out. Some people use coffee in the morning as a...
  20. My Butt Hurts

    Update on Dusty's Matt

    Wow - I completely missed all of this, and then I saw your changed siggy and went searching. Sorry about the diagnosis. Glad you made it home just in time for Christmas. They are both lucky to have you. MBH
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