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Update on Koko..I will start by saying we really like his new doctor. He sits and explains everything to you and if you have questions he doesnt act like you are stupid. He for sure doesnt say I dont know like last GI did. We got results from byopies.Kotas Crohns is in the Terminal Ileum all...

Kota goes back to see the GI tomorrow. We will talk about byopsy reports and what kind of treatment needs to be done. He has been off all medicine besides Nexium and Amitriptyline for 3 weeks. The last week he has felt better than he has since he was DX in February. He ever rode his dirtbike...

This is a good question.. Something I havent thought about but should have.. Dr said we may have to start Remicade and DS takes allergy shots..

Farmwife I call Ko my littleman also. He tells me sometimes mom I am a big man becasue I am man of the house when dad isnt here We still have no results. Its driving me crazy. I have called the doctors office everyday asking if they are back yet. The nurse called me yesterday and said byopsies...

Thanks everyone. Thanks Clash I didnt know that the ICV was the samething. I wonder how long it will take to get results back. Dr office said they werent really sure maybe 7-10 days.

His heart rate came down the day after he stopped the meds. I knew that if his body was that toxic from the meds it wouldnt be out of his system that fast. I was completely against him being put back to sleep with his heart rate being so high. I had told DH I wouldnt let them do anything until...

He goes to see his Gi on the 11th. Unless when they get the pathology reports and they want him in sooner. It does scare me with him not being on meds. The new doctor is trying to tell Kota that he doesnt have to be in pain everyday and that its okay to say when he hurts. His old Gi had him...

Most of the time it was the attending but his Gi came in to see us a couple of times. The waiting onthe pathology reports are so hard. It seems like we have been waiting forever.

I know I havent posted in quite sometime, but I thought it was time to give an update. We started seeing the new GI (the one thats apart of Inprove care now) We love him. You can tell he loves his job and helping kids with Crohns or UC is his number 1 priority. We learned more from him then we...

We just went last Monday for a Dexa Scan. We dont know the results yet.

Glad you are home

Its fine David I know you are busy. I have been checking back to see if you posted anything :) though. I talked to nurse today and she was pretty rude with me. She said doctor told her everything was normal. I said well the results show its not normal. I said what can cause his vitamin A to be...

I was tired last night when I was repying an di didnt list all his medicines. He takes Promethazine but not on a daily basis, tylenol and amitriptyline 25mg He does have hypercalcuira, small atrail septal defect, benign rolandic epilesy and asthma. I just makes me so mad because they know I am...

Coping this off bottle Peppermint oil ---- oil of peppermint 50mg (Mentha piperita) (aerial) %DV not established Other ingredients Sunflower seed oil, Gelatin, Glycerin,Enteric Coating,(Sodium Alginate and Stearic Acid) No artificial color, flavor or sweetner, No sugar, No starch, No milk, No...

His magnesium came back normal, Vitamin D is normal, Vitamin B12 & Folate was normal

He takes peppermint oil twice a day. 40 mg of nexium, 100 mg allopurinol, 12.5 mg of 6mp, culturell. HE isnt taking a mult vitamin

What does it mean to be high on Vitamin A? How do you get high on Vitamin A? Just got result of last weeks labs. I was told by GI yes the old Gi ordered these. I was told everything was normal once again. I got results and everything isnt normal.It shows his vitamin A is high should be between...

I have another question? When your child eats something that upsets their stomach. Does it get upset as soon as eat it or is it hours later? Thanks

We go the 24th of July to see new Gi. We leave the 27th of this month for vacation and wont be back until the 15th of July. I asked about the 6mp and high heart rate and he said he had never heard of that. He said he is sure Ko has been on many meds over 12 year that could have caused high...

I was going to update last night when I got home but I was so mad. We were told to wait Kotas weekly labs until after he seen Gi yesterday in case he wanted to add more on top of weekly ones and magnesuim. Gi was seeing both boys yesterday Sky at 3:15 and Ko at 3:30. So we get there about 3. I...