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Well I called Gi yesterday because Kotas pain has been staying pretty bad. Last week they couldnt even get the dosage of Bentyl right. Yesterday they didnt even call me back. So last night Kota got really sick at his stomach and needed to throw up. So I called Gi on call because all I had was...

I thought maybe anemia, but what do I know I am just a mom. I asked for them to check his B12 last Monday because it hasnt been checked. I was told there was no need the rest of his blood work looked good. They were also suppose to be doing a blood test to check his inflamation level. I asked...

Kota had a pretty good day yesterday :dance:. He played more than he has in a long time. He even had his best friend stay the night. I didnt let them stay up to late and then let them sleep in becasue I knew he would be playin all day. He was only outside for about 20 minutes yesterday. The rest...

Thanks so much Happy I am going to try that. Because I miss and love my daddy so much. Susan 2 I dont want to turn my back on my mom and never really expected her to be a certain way. I may have wanted her to love me the way I do my kids but I know she truly isnt capable of that. Tonight did...

Kota has been having bad dreams the last few nights. He says he has dreamed that he has cancer and he is dying. We went out of town today and he slept in the car. Well he woke up scared and said he had the same dream but this time he was at his funeral. My heart breaks for him and I am not sure...

I am not sure if its okay for me to just come here and vent or not. I just really dont have anywhere else to go and my heart is aching so bad right now. Feeling abit overwhelmed today. Kota hasnt been feeling any better which makes it hard as you all know so well. We went today to the cemetary...

I know waiting is horrible. Even worse when you child is in pain. Thinking and praying for you both

How do I find out when there is a walk around us?

I was wondering the samething. Kota was sent home from the hospital with 10 norco. That was well over a month ago. GI will not give him anything else. HE says for him to take Tylenol. Kota says there is no sense in taking Tylenol it doesnt do anything. GI says well give him Motrin then :ymad...

We are new to the board and recently dx. So I dont have alot of advise for you. Just wanted to let you know that I am thinking and praying for you and your litte guy.

He is on 6mp, prednisone, pentasa, nexium, culturell, multi vitamin with iron, amitriptyline, zopenx, and allergy injections

Judith Thank you so much. All this is new to me and it all worries me. I just want the best for him and he has so many other health issues on top of this. I keep telling him he will feel better and be back to himself before long. We had to go get new clothes the other day because his stomach...

Thanks Judith He has been on it since February 16th. He was started out on IV steriods so I am not sure the dosage then. When we came home he took 40mg for 2 weeks, Then 35mg for 1 week, 30mg for 1 week, 25mg for one week. Today we step down to 20mg for one week. Then 15 for week and then when...

Thanks Judith for explaining this to me. Everything is new to me and all I ever get from the office is everythings normal. Keep doing what you are doing and come back next Monday for more blood work. I just wish he would have some relief from his pain. Tylenol doesnt work and the pain is as bad...

Here are the reports March 5 2012 GGT 30 3-22 CBC W/DIFF White blood Cell Count 13.2 4.5-13.5 Norm Red Blood Cell...

Had to edit because I said call me instead of can tell me

Okay I finally recieved the lab reports that I have been asking for the last month to see. I have them now but I dont know how to read them. I am hoping someone here can help me. All I get told is they are normal. I am not sure what I am suppose to be looking for. So if someone can tell me I...

Thanks I wasnt sure where to post this at.. Thanks

Okay I finally recieved the lab reports that I have been asking for the last month to see. I have them now but I dont know how to read them. I am hoping someone here can help me. All I get told is they are normal. I am not sure what I am suppose to be looking for. So if someone call tell me I...

You both are in my thoughts and prayers