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  1. allieinwonder

    Throbbing-like pain near upper left rib and stomach

    Yup, that's exactly where my pain is too (I even measured it with my hands LOL). When my flare is at its worse it burns up which is quite scary. Sometimes I have the sharp pains, but usually its more like there is a hole there...like a bullet wound hole. Its really hard to describe, but its...
  2. allieinwonder

    Throbbing-like pain near upper left rib and stomach

    I know I'm late to the game here, but my pain is always where you have described. Upper left abdomen, right where the ribs end. Mine is inflammation of the connective tissue. It feels like I have been shot basically, and you can feel the inflammation by hand (why I was hospitalized for "bowel...
  3. allieinwonder

    Undiagnosed Club Support Group

    Yeah, we have been on again off again long distance since six months into the relationship. It never gets any easier, which is why we are getting out. Its just too much with the illness. HA, dog on a treadmill...that is so funny! Kallie LOVES to walk, so this might actually be a good idea. :P...
  4. allieinwonder

    Undiagnosed Club Support Group

    Cat, I am doing the same thing with my weekend! How do you manage to walk your dog everyday in this weather? I am so grateful my dog seems to understand, because I seem to only have the strength to take her every few days. The other day I asked her if she wanted to walk when I got home from play...
  5. allieinwonder

    Undiagnosed Club Support Group

    Phear, welcome to the club. Don't get discouraged, it can take a long time for crohns to get bad enough to show up on scopes. One of my GP's over the years explained that the ulcers can be too mild to scar, and when you do a colonoscopy if you aren't in a flare it might now show anything. It...
  6. allieinwonder

    Undiagnosed Club Support Group

    Thanks Carrie, that's the dose they put me on. She got out a book that said to prescribe 300mg, but they only had 200mg in stock. They expect the rheumy to change it.
  7. allieinwonder

    Undiagnosed Club Support Group

    So this morning I called my GP's office to get the whole med thing fixed. a few hours later my GP herself called me back, saying they don't carry tizadine, and I am basically SOL. She hung up before I could ask her for something else to help me sleep. :( I guess I will discuss it with my new...
  8. allieinwonder

    Undiagnosed Club Support Group

    I'm sorry you aren't feeling well Jill and tamesis! My appointment today didn't go as well as I had hoped. They looked at my rheumy's recomendations, put in a refferral for both the GI and Rheumy at the military hospital 3.5 hours away, and refilled my meds. I am now on plaquenil, but they said...
  9. allieinwonder

    Undiagnosed Club Support Group

    aww sunshine, you have enough to worry about! I have no idea if there is actually a test they can do to check inflammation of connective tissue...it doesn't show up on CT scans or scopes. You can feel it by hand though. I'm hoping at this point they will just treat! Two more days till my...
  10. allieinwonder

    Malnutrition/Weight loss

    Hey Everyone! I haven't posted a thread in quite a while, so before I ask my question, let me catch you up. ;) I have finally been given a label for my condition. After my ANA came back positive, and I responded well to a prednisone trial, I have been diagnosed with "Mixed Connective Tissue...
  11. allieinwonder

    Undiagnosed Club Support Group

    Sunshine, I do not think that is awful at all! I have forced myself into a flare so many times right before tests to try and get answers. What worked best for me was eating my trigger foods....spinach, raw fruits/veggies, and whole grains/high fiber. Today is weigh in day for me...and I have...
  12. allieinwonder

    Undiagnosed Club Support Group

    Cat, I will be on 2.5mg for a week. My appt is just with my GP, not a rheumy. :( But I'm hoping since I have a DX that they will just start treatment through my GP since getting specialized healthcare here is so hard. A rheumy would either be a 3.5 hour drive one way or a German national that...
  13. allieinwonder

    Undiagnosed Club Support Group

    Shan, I'm glad you have a diagnosis on why you have Vertigo! Star, I agree with Cat, I would do the trial of the meds. My med trial is also why I have a diagnosis, even though my Rheumy said before we did the pred trial that it wouldn't help me get towards a diagnosis at all (I think he just...
  14. allieinwonder

    Undiagnosed Club Support Group

    Cat, I'm doing alright. :) My business is going well. I figured out as a military spouse I can't make this a full-blown business here in Germany due to German law, so its a hobby that makes a bit of $ on the side. I had so many custom orders in 2011, and only have one left (thats a hat, which is...
  15. allieinwonder

    Undiagnosed Club Support Group

    Sunshine, the purse sounds awesome! Can't wait to see pictures of it! And I hope you are able to make it to the concert...it sounds like you will be though, because it is pretty close and your appointment is right before it. Just keep your hopes up! tamesis...holy cow, what an ordeal. :( The...
  16. allieinwonder

    Please Help

    Allie_469, if the pred worked, it is NOT IBS. That is a key clue that something inflammatory is going on, because that's what prednisone does, it tells the body to stop having the inflammatory reaction to "attacks". If it was an infection that was causing your symptoms, you would have gotten...
  17. allieinwonder

    Undiagnosed Club Support Group

    Wow, what an interesting thing for the nurse to say...I wonder what she means by that? Maybe she clearly knows something is wrong and they want to help? Whatever the reason it sounds like you are in good hands! I hope the rheumy can help as well...I don't know where I would be without my rheumy!
  18. allieinwonder

    Pain medication and addiction in Crohn's Disease

    I honestly believe this problem will always be around... I have been on pain meds since my issues started in June of 2011. Different doctors have given me different things, and I have pretty much had it all (hydrocodone, oxycodone, morphine, diluadid, etc). Once I was seeing a specialist I was...
  19. allieinwonder

    How long do you hold out on going to the hospital?

    It sounds like you went at just the right time! Just like others, I wait wayyy too long. The last time I waited over a week and ended up being admitted for almost a week. It would have been much better if I had nipped it in the bud when it wasn't as bad. Welcome to the forum and I hope to see...
  20. allieinwonder

    Please Help

    no problem Rebecca! I didn't know about it until I went from a GI to a Rheumy and they found a high positive result. :)
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