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Nooooooo! Don't give up sweetie! I know this is sooooo hard....but if you just take it day by day, and when you come to these dead ends you change doctors, eventually you are going to get your diagnosis. Please do not give up! There are so many doctors out there that love to throw IBS around...

Hi Blackbird, welcome! Yes, as others have said, I am diagnosed with Behcets. I was just diagnosed a month and a half ago after chest pains put me in the hospital. If you want to read my entire story from IBS to Behcets it is in this thread: http://www.crohnsforum.com/showthread.php?t=44354...

Bozzy, those night sweats sound awful! I hope tonight isn't as bad! Heather, that sounds like a really long process just to get blood tests done! I'm glad you are making progress with it though. I hope your referral takes the minimal amount of time so that you can get this going and start...

Star, I am so so so sorry you seem to have hit a dead end. Yes, it is time to see someone else! That is really good that they have encouraged you to stay on the pain meds..you are right, most don't get any! Even with my new diagnosis I am still only being given three tramadol a day, and he plans...

I've had that happen too! Someone I've never gotten along with messaged me out of the blue asking me about Lupus because her blood test results showed that her white blood cell count was low. Her doctor had told her it was no big deal unless it kept happening, but she (like all people these...

Hey everyone! I hope everyone survived the holiday season alright. Welcome to all our new members, sorry you had to join us here but this group is an amazing place to come for support. Not having a name for why you are sick can be SO stressful! We all here try and keep each other going. :)...

Actually, when he came in and have me my diagnosis, I don't think any part of me was upset, lol. I know it sounds awful, but after 8 years of symptoms I knew I was sick....so telling me I was sick wasn't news to me! I was absolutely thrilled. Now that it has been about a month and it has had...

Good luck Stacey! I tell this to everyone...patience is key with chronic illnesses. Diagnoses take a very long time! I wouldn't keep hoping for a diagnosis each appointment, I would just keep chugging along and when the diagnosis comes, it comes. I know I'm being blunt, but after 8 years of SO...

Sunny Days, I'm so sorry you had such trouble with your surgery. :( I agree with bozzy, I've had to disappear from the forum at times too. Heather, I have skin issues with my disease, and it skin issues is one of the criteria for behcets. Crohns, lupus, and other autoimmune diseases can cause...

Yeah, I can understand why you would be scared of surgery. I have actually had hernia repair surgery....they thought my abdominal pain was due to a umbilical hernia back in 2010 (an ER doc literally poked me, I screamed, and he went "thats interesting" and said hernia). It was an outpatient...

Heather, you are on the right track. CRP measures how much inflammation is going on in your body, and it is raised with crohns/IBD. The GI will be able to order more tests, like a colonoscopy. Going gluten free is to start seeing if it is Celiac disease. Keeping a diary will help show patterns...

Hello Heather, welcome to the group. It definitely sounds like you have something going on, and it sounds like a trip to your GP is needed to check it out. I have a fear of doctors as well, that kept me from going to a GI for a couple years despite my GP telling me I urgently needed to...

I haven't heard of a link between lupus and calorotectin. :(

Stacey, the others are right, there are a lot more tests they can do before giving up. And you are right, if the pain and D is causing you to wake up in the middle of the night, it isn't IBS. To everyone here.... If it turns out not to be crohns, it could be many other things that can cause...

Welcome to the club Scopey. You have come to the right place! I know exactly what you are going through...a year ago I went through many colonoscopies and upper endoscopies, then finally a pill cam, and all of them were normal. Right now the thing to do is try your best to patient and keep...

Isgs, your rheumy sounds AMAZING! Everyone needs a rheumy like yours. I didn't seek out a rheumy for my disease until a year ago, and I have now seen 4, the fourth being the one who diagnosed behcets. That's not weird that you like to read about my experience, I thinks its awesome because you...

bozzy, I'm so sorry about the Fibro write-off. :( My first rheumy tried to diagnose me with fibro, and I literally just looked at him and told him I wouldn't accept that. I have been "tested" for fibro by every doctor since, but every doctor has realized that isn't whats going on. The thing...

Actually, I'm typing this from my work computer. Turns out my company really likes me, and when I brought my health issues to the table and asked to quit, they offered to cut my hours in half and make me part time in the same position. I was shocked, and it felt like my prayers were answered. Of...

Thanks guys. :) Cat, of course it is ok that you put stuff on here. :P Treatment for behcets is a lot like crohns...prednisone, remicade, then sometimes methotrexate or drugs used to treat AIDS. My appointment yesterday went alright...apparently there was miscommunication at the hospital...

Aww you guys are too sweet! I just really hope that if others here on Crohn's forum have behcets, and their doctors have been writing them off with IBS, that they see this and they might get somewhere farther in their diagnosis. Especially if they are having issues with really bad mouth ulcers...