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Welcome Greg, sorry you made it to this select group! It is a journey, finding out what food you can tolerate and not tolerate. After toying with it for 20+ years, I have settled into the Paleo diet, but everyone is different. I found that processed foods really bothered me... But I have to...

Interesting read. Thank you for sharing. For the longest time, I thought I could not eat vegetables. But over the years I have worked my way into the Paleo diet, eating mostly vegetables. As long as they are cooked and peeled I seem to do well on this diet.

Night sweating is worth letting md know...

I think a lot of us feel that way to some degree. I cycle through bad times and not so bad times. I think it is important to continue to force yourself to engage in life to some degree. I also believe a lot of the exhaustion can be due to the disease process itself, our bodies are fighting hard...

I would say definitely need a juicer that filters fiber out. Especially if you have strictures.

I frequently will go on liquid diet for a few days or partial liquid for a few days and it always helps. I have had bowel resection for stricture and have another one now that I am managing. But when I feel things are going bad, I will go to liquids and usually that helps. I will do bone...

So difficult when life gets crazy. Hang in there.

No. But thanks for sharing, interesting.

Mine made load noises due to stricture, worse stricture got, worse sounds got. Surgery relieved most of it.

I totally understand. Are your symptoms well controlled? That helps if you stabilize symptoms. I was never a real party person or needed to go out much and of course this disease pushed me further in that direction. Tough.

My understanding is there are subtypes: inflammatory, fistulizing, stricturing etc. I have stricturing, I've had a bowel resection. But never had a real problem with diarrhea.

I've been on Entocort for a long time and definitely have good days/bad days.

22 yrs diagnosed, but symptoms for at least 25. One resection. Daily symptoms and taking lots of Meds. Just trying to stay positive, not let it own me. Thankful for everyday I'm feeling okay.

I know in the US they have really been tightening up on this kind of assistance, mainly because the program here in US is going broke....

Teeny, Do you work for Kaiser or just have kaiser insurance? You can certainly carry COBRA insurance until your coverage with your new jobs kicks in. COBRA is expensive. I believe you have to pay 100% of insurance cost + 2% for administrative fee. (so if your employer currently contributes, it...

Sorry for all you've been going through. I don't take humira, I'm on remicade. But it sounds like your disease is progressive enough that you really don't have much choice but to give it a try. I also had a bad reaction to Aza, but I've been tolerating remicade well for years. Good luck to...

Kind of sounds like a partial obstruction

Has anyone had luck with online pharmacy orders? I am considering ordering my Budesonide from online pharmacy so I can save about $1200/yr.

So, the cost of a prescription of Budesonide just went from $20 to $500 for me due to insurance reclassifying it as a "specialty" Tier 3 drug. Are there any alternatives?? $500 each refill is gonna be tough to swing.

Wow, that is a lot to deal with. Sorry you are going through so much. Can you ask for a second opinion??