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"and was actually the 1st pediatric patient to test drive Remicade" WOW-That is AMAZING-!!! I am sooo glad to hear it-I am hoping that it works for him. He starts College in September & I would really like for him to go flaire free :)

Today went off without a hitch-So far No reactions!!! WooHoo!!!! He was a little chilly & sleepy... Our Remicade nurse was AWSOME~!!! She said that we would know in two days if he was going to have negative side effects-or it would have happened while he was in the chair... Thanks for all the...

Wow-Crohn's Mom-your daughter is Beautiful!!! I called this morning He will actually start tomorrow at 9:30AM.. We are excited!!!

Thanks Tess- I was re-reading some of my earlier posts-Uh-Spelling is awful- I swear I can spell lol I have been posting from my phone which is NOT fat finger friendly. Thanks soooo much for the warm welcome everybody :)

Hi & Welcome :) My son is also18- we have done pentasa-enticort & prednisone. He is going to try remicade for the first time next week- we are worried but hopeful- can be life changing Check out the remicade forum- :)

Thank you woo much Clash & Dusty :) Thanks for the info on the 504 plan & the school thread. I have already found amazing information on this site. Everyone has been so helpful- the remicade club is Awesome!!! It cab such sn embarrassing disease for teens- just really aux :p Thanks again for...

Ok-I have read that it can be beneficial to tell your story in order to get better acquainted with the forum community. Since I plan on being here for a while I decided to take the plunge & bare all lol... My son, Jake is a strait A student -has only had after school detention once (because I...

My cousin has RA-It is a very painful condition- I will be thinking of you & your son-I hate that yall have both had to endure this situation :(

Thank you so much Empress :) I have been doing the research but some of the studies are hard to read & even harder to understand.-I am literate-have a masters degree but when it comes to reading medical studies my eyes cross and my mind turns into a fruit salade lol The study i found stated...

Hey Tess-I pulled up the information on Enteral Nutrition-I can see how taht would make it much easier on the lower intestines & I will definatly keep it in mind. We go to the Doc Fri & he is suppose to meet with the remicade nurse for labs on Monday- He has National Honor Society Awards...

Yes-That was extremly helpful!! I know that his Doc is ready to be aggressive. I am just worried about the really bad side effects-If it goes well it will be great but if it goes bad it can be fatal :/ I am not sure that we really have a choice

I will definatly look into that. Yes his doc found a fistula forming -He said that the remicade will stop the fistula from forming

Wow-I did not know that... I agree completely-Its like you might as well flip a quarter-If he doesnt start aggressive treatment soon he will end up in surgery-If we do start him on it it could result in terrable reactions including cancer...Jeez :/ Sorry about the growth failure-Jake is 5'9 &...

That is why I crohnsmomfreakinout-I cant wait to be crohnsmomchilllingout lol-My son is a young male-I am worried about the hepatosplenic T-cell lymphomas as it is fatel. I am really sorry about the Lupus & RA- I have tried to read all I can but some of it is so confusing The remicade is mouse...

All I can think is that the diseased bowel was pretty extensive and there is a fistula forming-He did say the remicade should stop the formation of the fistula...I am really not sure :/

Also does anyone know whay they always seem to start remicade first then go to humara? Seems like the humara has fewer reported side effects-It seems like they would start with that one-Am I missing something?

Hi New Poster here- My son was diagnosed with Crohns in 11/2010. He has been on Pentasa & Enticort. The steriods seemed to help his intial flair -The Pentasa seems to be worthless :( He now has a new doc that ordered the works-Fresh labs-colonoscopy/endoscope and ct scan. The resuls were alot...

I am new here so please bare with me... My son 18yrs of age was diagnosed in 2010-He was also on the Pentasa boat-Took enticort then prednisone to control his first major flair. He stayed on the Pentasa but it did not seem to help at all. He has a new doc & has had a new...