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Crohn's Disease Forum

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  1. L

    13 year old with crohns

    We are so blessed to live in a day and age where people (young & and old) can reach out via internet to others who are facing similar situations and also access records and other data that help us learn how to face our trials (such as Crohn's Disease). Not all data is accurate and true so that's...
  2. L

    My Battle with Crohn's Disease

    Thanks David, after the ileostomy surgery my dr said I only had 2 years or less to reverse the surgery and its been eight years now. If I would've known at that 2 yr marker that not reversing the surgery would cause diversion colitis or any other possible situations I don't know about, and that...
  3. L

    My Battle with Crohn's Disease

    Ok, its making more sense to me now. It sounds like these enemas are the only way to fix the deficiency.
  4. L

    My Battle with Crohn's Disease

    Correct, I had my entire large intestine removed and they left the rectum in place while attaching an ileostomy bag. They gave me the option to reconnect the small intestine to the rectum within two years of the procedure, but I chose not to reconnect it since the bowel consistency was too watery.
  5. L

    My Battle with Crohn's Disease

    Thanks David, my doctor's office just called me about an hour or so ago after doing their own research and told me they called me in a prescription for the same thing you just mentioned above. Do you think there is a particular food ingredient that is causing this shortage of short chain fatty...
  6. L

    I need some honesty

    I agree with Misty-Eyed..."For all you know, she could be in remission and be fine for the next goodness how many years and you could develop some equally if not more horrible disease in that time." ...afterall, if America keeps providing and eating all the bad foods (preservatives, fats...
  7. L

    My Battle with Crohn's Disease

    Thanks kiny, that's very helpful to know. I guess if drs can try meds on patients then I don't see why patients can't try things (after researching of coarse) too...since, after all, the medical world says there is no cure for autoimmune disorders...so they are doing their research too. I've...
  8. L

    My Battle with Crohn's Disease

    Thanks kiny, I'm not sure either...I read somewhere in another link that the gel part of the aloe is what causes problems. Idk. I need to read more, but the more I read the more questions I have and I keep getting sidetracked different directions cuz there's sooo much info out there on so many...
  9. L

    My Battle with Crohn's Disease

    My 20-yr-old son (who is the same age I was when I had my first CD flare up) has an ulcerated bleeding anal fistula that his Dr has advised doing surgery to fix. He is here for the summer and returning to college early next week and not returning until next year. So he wants to hold off on...
  10. L

    My Battle with Crohn's Disease

    Btw David, thanks again for the links...I just read that "Aloe Vera contains mucilaginous polysaccharides (very hard to digest for people with compromised digestive systems) and increases the release of tumor necrosis factor (what Remicade blocks) which is associated with IBD inflammation and...
  11. L

    My Battle with Crohn's Disease

    Wow, pretty scarry. I did reread the info on the main website and was a bit worried about not enough details, but when I clicked on the ingredients list it does have a link of references for the "healing components which have been demonstrated in over 400 studies conducted by hundreds of...
  12. L

    I need some honesty

    Thanks CLynn...by the way confused boyfriend, I definately was concerned and scared that my husband would feel or look at me differently after surgery (especially when I eventually ended up with an ileostomy) but it didn't even phase him. It was harder for me than him to accept my physical...
  13. L

    My Battle with Crohn's Disease

    Thanks Snoflayk505, I know that diet plays a huge role in health and its very encouraging to hear from others experiences. I just got back from the GI dr visit and she seems to think I am not having a Crohn's flare up since my small intestines and rectum have never been inflammed with Crohn's...
  14. L

    My Battle with Crohn's Disease

    Wow, thank you SOOOOO much David!!! I will do my best to get this information now that I know what to ask for. It may take a few days to get results. I can't thank you enough!
  15. L

    I need some honesty

    I have been blessed with an amazing and supporting husband who has stood by my side throughout my Crohn's flares and remissions. I have had five surgeries and now have an ileostomy and my husband and I have no problems with our sexuality since he loves me for who I am not what health issues I...
  16. L

    My Battle with Crohn's Disease

    I forgot to mention that I do take Vit. D3 and B-12 about once a week...I probably need a lot more, but I am looking for a vitamin that contains a combination of all or many of the vit/min that I need daily. My aunt suggested that I take a corral calcium of some sort as well...
  17. L

    My Battle with Crohn's Disease

    Thank you for your responses hlmurray99, I'm terribly sorry for your frustration as well, but it sounds like you have come to a positive solution by juicing to get the necessary vit/min needed in your diet. Thank you David also for the VERY valuable links for more dietary insight. I have not...
  18. L

    My Battle with Crohn's Disease

    Hi, I am a 40-yr-old woman who was diagnosed with Crohn's disease when I was 20 yrs old. The stress of my first pregnancy brought on my first and most debilitating Crohn's flare-up. Doctors were unable to diagnose my condition during the pregnancy until a few months after my delivery. It was a...
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