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Hi Emmie So sorry to hear that like me you too are suffering, I have been in constant pain for 11 years now and each year the flare ups get progressivley worse. I have every sympton there is for Crohn's disease but still they will not give me a label. I have had MRI Scans which showed nothing...

Hi Stargirrrl No they don't seem to want to give me another Barium, I take Ciprofloxacin for the Bacterial overgrowth, doesn't relieve any of the pain though. I am just so depressed at the moment, this is years I have been suffering, like many of us on here, but it shouldn't be that we have to...

Hi Everyone I am like hundreds of you out there, undiagnosed and crying for help! I have been suffering right sided abdominal pain for the last 11 years now and all I can say is that every year the pain gets worse. In 2002 I had my gallbladder removed by keyhole surgery as the doctors thought...

Hi Everyone Thanks for your replies, believe it or not I am coming off of the co-codamol in this way under the advice of my gastroenterologist, the pain management team told me just to stop taking them, but the gastro doctor was the one that told me to ease off of them this way. I think I will...

Hi There I am an undiagnosed member of this site, but all of my symptons point to chrohns. I have been on Co-codamol for about 11 years now after several requests to the doctors asking them to put me on something else. Anyway have been prescribed Tapentadol and have been told that I need to...

Yes that seems to be the doctors quick diagnosis for everyone IBS!!! I know I have something really wrong going on inside me, after all I am the one suffering the pain not them. The thing that really worries me is the fact that they are not making the diagnosis and sooner or later if they do I...

Hi Rebecca Thanks for replying. The last colonoscopy I had done they couldn't get anywhere near there, the consultant said that for some unknown reason the part of my bowel that should be over on the right hand side is being pulled over to the left. Too risky to do another one, hence that is...

Great to hear that you are on the road to recovery. Just take it slow and don't rush things and hopefully you will be back to eating all of your favourite foods soon. I think you are so brave and are coping with it all very well. Take care of yourself

Hi Everyone I have been suffering for many years and am still waiting to be officially diagnosed. All of my pain is on the right side of my abdomen, apparently I have ulceration of the ileum along with a slight narrowing. What I would like to know is, I cannot lay on my right side as the pain...

Hi Teach28 Thanks for your reply, I just do not know how these people get away with making people suffer. A lot of the problem is aswell is that some doctors don't like to be proved wrong, I do not care who is wrong or right but all I am asking for is a diagnosis. The longer chrohns is left...

I actually think thats what they diagnose everyone with first is IBS I have been diagnosed with that too. I am so pleased you have an easier life now, you sound like you have really been through it. Hope the chrohns is not too bad at the moment. Thanks for getting back to me:)

Hi Teresa Thanks again for your reply. How many years did you go undiagnosed? I have had the capsule endoscopy done about 4/5 years ago. I also have bacterial overgrowth, is that common along with chrohns?:)

Hi Teresa It is on my right side, it never goes away and has been being investigated for several years, I have all the symptons of chrohns disease but because my tests have come back negative they do not want to diagnose it as that. I am now losing weight at an incredible pace which is also a...

Hi There Yes I have had my gallbladder removed.:)

Hi Everyone I just wondered if any of you that suffer with chrohns get pain around your liver area that radiates around to your back. The reason I am asking is the fact that I am still undiagnosed, the pain is getting worse and the weight is just falling off of me, but still the doctors do not...

I hope all goes well for you Angie, you are being very grown up and brave about it all. You'll be fine and eating all of your favourite foods again soon. Take care and keep us posted.:ysmile:

Hi Vjw I have been told by my GP that I should put a complaint into PALS also, as even when my GP has sent letters to my consultant asking for him to see me as an emergency he has just basically ignored her. The thing is I think too many of us worry about stirring up trouble with these doctors...

Well I will see what the MRI SCAN shows (if anything) on the 3rd Sept and take it from there. This whatever it is I have has ruined my life for the last 11/12 years and I am trying to hold my job aswell which sometimes proves more than enough for me.

I really feel for you, and I hope you get out of hospital soon. Nothing surprises me with a lot of these Doctors nowadays, I have been in excruciating pain for 11/12 Years now, one minute they think its chrohns the next minute they don't, they won't even do a laparoscopy because of creating scar...

Hi Guys Have been to visit my GP today she is really concerned over my weight loss, she has given me the prescription for the drugs that the pain clinic have reccommended and they are Pregabalin and Tapentadol, she has also given me some more Fortisip drinks and told me to take 2 a day instead...