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  1. thejdubb02

    Remicade Club Support Group

    The trip didn't give you the disease but stress could more than likely started a flare. Stress is a major trigger for me. As a matter of fact my start happened on a trip. We thought for almost 2 months that I caught something there... Later to find out it was my new disease. :banghead: 2
  2. thejdubb02

    Remicade Club Support Group

    Today is my last day on 5mg of Prednisone! Tomorrow will be my first day of no prednisone in over 3 months. Finally down from 40mg! Remicade had done wonders for me! I hope everyone else finds relief as well whether with Remicade or something else. Just thought I would share my success. 2
  3. thejdubb02

    Starting first round of Remicade tomorrow

    Having my last loafing dose of Remicade today. All is still going pre well. Oh yeah, and we find out what sex out baby is tomorrow! First child due in February.... So excited!! 2
  4. thejdubb02

    Starting first round of Remicade tomorrow

    Update So I am down to 10mg of prednisone. Things are going well. Remicade seems to be holding up to the flares. I have been tapering slowly over the last month, hopefully I will be able to get down to 5mg next week. 2
  5. thejdubb02

    Sensitive Teeth?

    Has anyone experienced this with Remicade or Prednisone, very sensitive to cold and hot teeth? My front top teeth are very sensitive since starting Remicade. Anyone else? 2
  6. thejdubb02

    Flu Shot on Remicade

    As its flu season swiftly approaching, what's the deal with the flu shot while on Remicade? Safe? Bad idea? Any info helps. 2
  7. thejdubb02

    Starting first round of Remicade tomorrow

    Yes bad bleeding even while on 40mg of prednisone. That's why we went to remicade. However today no blood. So not sure what that little bit was the other night. I will keep you posted.
  8. thejdubb02

    Starting first round of Remicade tomorrow

    Calling doc about it tomorrow. Currently at 20mg prednisone and next infusion isn't until Oct 4th. Will be 3rd loading dose. I also take 4 Lialda nightly. I assume he will have me go to 30mg for a week or 2 and start tapering by 5mg/day this time, but we will see.
  9. thejdubb02

    Starting first round of Remicade tomorrow

    Update: since I have been doing so well on Remicade doc decided to have me start tapering off of Prednisone 10mg per week. I am at the end of 20mg week and last night blood came back full force. Today I had the urge of a bm but only drops of blood. No diarrhea yet but worried its gonna be a...
  10. thejdubb02

    First Time Cimzia

    I have not expiernced this now. I have had 2 doses now.
  11. thejdubb02

    Starting first round of Remicade tomorrow

    So I am on my second round. As of right now, you would think I don't even have UC. It's been that good for me so far. I felt change the next day however everyone has different results.
  12. thejdubb02

    Remicade Club Support Group

    2nd Remicade infusion today. It's helped so much from the first one. Has anyone experienced it gets even better after the second or does it just keep the same going forward? I will be happy either way just want to know others experience.
  13. thejdubb02

    Remicade Club Support Group

    I have my second infusion this Thursday. Looking forward to it actually. With how well the first infusion helped, I am just hoping everything stays the same after the 2nd.
  14. thejdubb02

    Cimzia/Humira/Remicade

    I am also finding Remicade is working amazing. However I stared with Cimzia which did nothing for me at all. Here is an awesome short PDF about all of these 3 biologic drugs...
  15. thejdubb02

    Skeptical

    Great post about differences between Remicade and Imuran: http://www.crohnsforum.com/showthread.php?t=21471 Check it out. Good luck! :D
  16. thejdubb02

    Skeptical

    Right now I am the same way. I am tapering off of Prednisone at the moment because my newly started Remicade seems to be working. I have UC and will find for sure this week if it's Crohns after my MRI results come back. My experience thus far is similar to you. When I hurt and bleed its...
  17. thejdubb02

    Consuming alcohol with Ulcerative Colitis?

    Beer so far for me does not make for a good situation. I get bad symptoms after a beer night. Still have not even tried other alcohols, a bit scared, and my 'cost vs. again' ' thinking won't allow me to even try. Haha
  18. thejdubb02

    Oral Thrush On Remicade?

    Update: So I saw the doc this morning. It is indeed Thrush and apparently it's extremely common when on Prednisone. I am on a mouth was thing 4 times a day that should help clear it up.
  19. thejdubb02

    Serious anxiety due to your condition!?

    Cotonelle wipes are just moist wipes that dissolve like toilet paper so they are made for bathroom use unlike other than moist towelettes. Plus they make them in travel packs to take with you. Much cleaner and gentle, for those LONG days.
  20. thejdubb02

    Serious anxiety due to your condition!?

    You are definitely not alone. I was always anxious about leaving the house. I was always wondering where bathrooms where. It's hard but like everyone else said, just find you're groove and you will be ok. I found it useful to make mental notes of bathrooms in different parts of town and...
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