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Crohn's Disease Forum

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  1. Vincent Vega

    Help peristimal hernia and crohns flare!

    hello everyone I've had CD for 12 yrs, a stoma for the last 8 months ,just got diagnosed with peristomal hernia, which feels painful and like someones pulling on it, Anyways ive had diarrhea for like 7 weeks it wont stop im getting weaker losing weight taking like 5 times my pain meds(dilaudid)...
  2. Vincent Vega

    Convatec wafer really uncoftable for me

    After gaining some weight my stoma retracted a tiny bit and shrunk in size so I called my Ostomy nurse and she ordered some convatec wafers. Well, after trying it on and wearing it for about 30 hrs it was really uncomfortable and even painful at times. it felt like a great deal of pressure on...
  3. Vincent Vega

    HELP my stoma is shrinking and retracting

    hey thanks for all the replies. The shrinking and retracting have seem to stabilized. Sometimes it puffs up, then shrinks down, I still poop fine just worried because it seems to only shrink when i lay down then it pops up when Im upright. I have quite a bit of output at night sometimes and the...
  4. Vincent Vega

    Humira after ostomy surgery

    I think its located in small bowel not sure though, and no it is not active right now in fact im having the best looking bowel movements in years
  5. Vincent Vega

    Humira after ostomy surgery

    Hey so i just asked my GI if he wants to start me back on Humira after everyone gives the thumbs up. I am really nervous cuz he said I would have to get used to it all over again like the first time(FUCK) . I hate Humira!! I don't know if it did any good in the 2 years I was on it i mean i did...
  6. Vincent Vega

    HELP my stoma is shrinking and retracting

    hey guys my stoma surgery was about 9 weeks ago and 2 days ago I noticed it stared shrinking and I think part of it has retracted , I have anxiety disorder so i been freakin out , it seems to really shrink and retract when I lay down to the point of pretty much exposing the wafer to soilage. I...
  7. Vincent Vega

    Quality of life

    i have read that many ppl have a hard time asking their GI or GP for MMJ even where it is accessible and it so sad, because it really does improve ur quality of life. Basically i got to a point where i was angry and had to be my own advocate!! it took a couple years of Doctor's jerking me around...
  8. Vincent Vega

    How quickly did you notice relief?

    works instantly for me!! However even though i have access to great MMj here in Toronto, i still need to take Hydromorphone for my severe ass pain almost daily, With the pot though, I have been able to cut down my dose of Hydromorphone from 20mg aday to about 6mg-3mg on some days..at this point...
  9. Vincent Vega

    Best strain for Crohns Colitis??

    I have found that during the daytime I smoke sativas like Jack herer, or Chocolate thai with a little kush mixed in--great for energy and mental stimulation, at night i smoke heavy indicas like Hindu Kush or Bubba Kush . Totally cuts down on my BM's and I can actually eat 3 meals a day!! but...
  10. Vincent Vega

    Humira Leakage!help!

    thanks so much for the reply. No one ever told me about the leakage so I was freaked out about how much humira I might have lost. i' still gonna give my GI a call tomorrow Thanks!!
  11. Vincent Vega

    Humira Leakage!help!

    I just took my shot in the stomach with the auto pen and when pulling out some of the Humira leaked out onto my stomach. Did i waste the shot?? it was a really tiny amount that leaked, but still i am nervous! should I just take a second shot?? any help would be appreciated. This is the first...
  12. Vincent Vega

    What types of anti-depressants help with crohn's?

    thanks for the replies and the support--it really helps :)
  13. Vincent Vega

    What types of anti-depressants help with crohn's?

    i've had CD for ten years now and although I knew deep down i was always depressed about my life with CD I never sought help. The last 3 years have been a nightmare, my disease has progressed into "complex periannal disease" multiple fistulas, strictures, abscess drainages,diapers:( crippling...
  14. Vincent Vega

    Ugh hurting today!!

    everyday I go the bathroom is like my own personal hell day in day out, It's like I'm shitting fire and hot lava and even cleaning up hurts really bad. All these fistulas and abscesses my ass is like a train wreck humira, cipro flagyl, pot, dilaudid all help but sometimes it's just too much ten...
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