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I was on prednisone for 4 months and definitely gained weight. I'm back down to where I was before I got really sick and have been upping my water intake and tracking calories on myfitnesspal (really helpful for seeing your average consumption and tracking foods). I did start taking...

I have not had any reactions in the 2 infusions I have done. I did get super sleepy after they gave the liquid Benadryl pre-meds and zonked out for a while both times, which helped pass the time. They give me a private room with a TV (with cable) and a DVD player. I've had people with me...

Crabby, I understand your concern, I promise it is just a questionnaire with a few items I was wondering about others in treatment. I don't know anyone with crohns so I don't have many to talk to. While I have no reason to distrust my doctor, I am beginning to second guess my need for Remicade...

It's just an inquiry. Are polls against the rules? I was just wondering how many people might have seen multiple doctors, decided to change diets, and had a genetic case (or is it all genetics?). I'm new to this disease and forum so was just asking for my own information.

I don't remember taking count, but at my worst it was around 15-20 times a day, and I was waking up in the night just for a BM. Right now it's somewhat normal (I think), 1-2 in the morning, 1 in the afternoon. So 2-3 each day on average. I can't remember ever having a day where I didn't...

Age and location? I am almost 33, in Texas How long have you been diagnosed with Crohn's/UC? Was diagnosed Feb 2012, so just around a year Have you seen multiple GI doctors, or the same one who diagnosed you? I'm curious about this one. I have only seen one GI doc and have stuck with her...

Since I'm newish, I was wondering if some of you wanted to participate in a little poll. Feel free to ignore any questions you don't want to answer. Age and location? How long have you been diagnosed with Crohn's/UC? Have you seen multiple GI doctors, or the same one who diagnosed you...

Hi, Michelle. Hard to say if the meds are working yet, I have had the 2 loading infusions and go for my 3rd next week. I did eventually get a packet in the mail from Remistart, but since I had faxed over the enrollment information, it took a while for me to make sure everything was "good to...

I was supposed to go for my 2nd infusion on Friday but somehow it didn't get set up in time (I think my Dr.'s office dropped the ball there, but they haven't admitted it). So now I'm on the books for Thursday and will have my 2nd one done. I was kinda mad I couldn't get it in before the end of...

Thanks for the response. I ended up going anyway, as they were feeling better by Monday and thought everything would be fine. While I survived and don't feel any worse than before we went, my husband caught something and started feeling the crud as we were leaving their house, which...

I had my first infusion of Remicade last Friday, the 14th, and my second scheduled for a week from tomorrow. Due to this treatment, my immune system is supposedly vulnerable (although I'm taking a bunch of vitamins to try and help), and I'm trying to avoid germy people as much as I can. My...

Same for me, I was there from 9 am to 1pm for my first infusion. I felt like it was taking forever (even with a little nap).

The vitamins are just to help boost immune system as a precaution. They might not be required by the doctor, but I asked and she recommended those daily. Probably just a multivitamin is good at the minimum. Who knows, maybe it's just a waste if time but I just hope I don't catch a cold while I...

I had blood work done 3 weeks before Remicade, got approval from insurance, was already on anti inflammatory mesds and started on vitamins B12, calcium, folic acid and C.

Ooof, no gas for me but I just got one with my first Infusion. I feel good, everything went fine without any reactions, and overall wasn't a bad process. There was a tv with cable and a DVD player in a private room, so next time I will have to remember to get a redbox movie to watch. Instead...

Yay, I'm so glad you are already seeing improvement! That's wonderful news!

The book "Breaking The Vicious Cycle" is really helpful in understanding digestion and the role it plays with these type of illnesses. Here's a website with more information the Specific Carbohydrate Diet: http://www.breakingtheviciouscycle.info/legal/listing/ I personally have not gotten to...

I have a mild case of Crohn's and am starting Remicade after having 2 colonoscopies and CT scans. I never had a "flare-up" until I happen to get a bacterial virus, and didn't know I had Crohn's before that point. Now the bacteria is gone, but it's been over 6 months and I still have...

I just wanted to see if you come back to tell us how it went. Good luck, I hope you see positive results for this soon. I'm starting my first treatment session this Friday, so I have the same concerns and anxiety that you probably have.

David, yes I had the colonoscopy done and based on the biopsy results that's what she said was the official diagnosis. I didn't really want to believe that I actually have an IBD, especially since I had never had issues before the infection started up, but she was saying the disease can lay...