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My son Jason is 12 and has had Orofacial graulomatosis since last August, we are still waiting Hospital tests for crohns elsewhere. No treatment has been offered yet. Diet isn't helping his lips very swollen, sore gums etc. Can anyone advise if they have received treatment for oral crohns please.

How are things now with your lips etc? Have you received treatment. My son is 12 and has very similar symptoms. Started one morning last August and we still awaiting tests. Very frustrating time for him and embarrassing going to school. Diet doesn't seem to help him