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Hope your husband is feeling better now!! wish you both the very best, thanks for your replies and encouragement, wish all of us didn't have these things to go through w our loved ones, but hoping for continued answers to these mysteries. I hope for doctors to always listen and have an open...

hello, I am very interested in this thread, have posted before, love this group! my son (17 years old with down syndrome and autism) has not been diagnosed w crohns so we are getting second opinion but in the mean time on july 3 this year he had a swollen scrotum also and it had drainage etc...

thanks so much Dusty, this group is amazing and I have learned a lot both times I have asked questions and just by reading! I just wish I could have another piece to this puzzle and that my son could tell me where it hurts, its okay though, now some obvious things are happening w his symptoms...

Oh I see, thanks, that makes since. don't know what they were talking about w the air from colonoscopy though. I will talk to them again hopefully about all of this! take care!

thank you both for your response and support! They are saying that they can't do pill cam during the scopes because of something having to do with the "air" they have to use for colonoscopy? not sure but they said they could do a separate pill cam later where they put him to sleep for a short...

hello all, I posted about a year ago, my son's colonoscopy showed self limiting colitis. I was not ready to do a pill cam or cte or mre and then he had 2 negative lactoferrin tests. (first was positive) also he started gaining weight after antibiotics to see if he improved (thinking SIBO) he...

Will be thinking of your son and hoping this increase will really make a difference! will watch for more updates!

thank you both! things to consider when talking to the doctor. We have considered changing locations, Vanderbilt is a huge place and it takes a very long time for things to happen but maybe this is everywhere! From reading from you all, I see it can take a long time to get help. I have been...

thank you so very much for all of this info! you are very kind! they have not done an MRI or anything like this yet. I was not sure if Andrew could tolerate this but maybe they could do something like you mentioned. was happy to hear what you said about the parasite test, You gave me such great...

thanks so much for the welcome! so far unfortunately a fc test has not been done due to insurance? but the other one that just tests for inflammation in stool was the one that came back positive.blood in stools negative. she did not say they were going to do the fc test next but did say it was...

Oh thank you so much for your reply! they first did the stool test showing that there is inflammation but not how high. this time they will test (monday) the test showing how high. she didnt say biopsy showed how high the inflammation was either. blood work so far has not shown inflammation...

I have been learning so very much from you good knowledgable people, thank you already! My son Andrew is 16, non verbal, down syndrome, autism, scoliosis, history of antibiotics for ears, recurring staph infections etc. always diagnosed with IBS (constipation to lose stools) tried so many diets...