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  1. Paccha

    Esphogeal ulcers

    I haven’t had an esophageal scope in a long time, but I have about one hundred ulcers in my mouth and throat. Some are tiny, some are clumped together. I can’t see where they end. The pain is unreal. I can’t eat or talk. Swallowing is getting much more difficult as painful. I have a doctors...
  2. Paccha

    Mouth Ulcer/canker sore

    I'm so sorry you're having to deal with this. It sounds like you haven't had much experience with these. Unfortunately, I deal with these mouth, throat and tongue ulcers constantly. At the moment I have about 22 in my mouth that i can see. It sounds weird to complain about the excruciating pain...
  3. Paccha

    Mouth pain....AGAIN!

    Thank you all so much for your suggestions. I actually do have a mouthwash. But it has never cleared the ulcers, only gives me about a half hour of relief, which trust me I am thankful for. I am going to try out that spray though. I haven't heard of that before. Prednisone does help, but only...
  4. Paccha

    Mouth pain....AGAIN!

    I truly hate to bug everyone with the same old stuff I always complain about, but I really feel like I am at my wits end and my doctors can't even help me anymore. Currently, I have about 30-40 ulcers in my mouth. They were worse last week, but I got my remicade Infusion and it seems to be...
  5. Paccha

    Mouth flare?

    I have had this problem many times. I the last 8 months most of my flares are taking place in my mouth. My stomach seems fine right now, but the stores in my mouth are out of control and insanely painful. I have been on prednisone on and off since January and it helps the sores, but the painful...
  6. Paccha

    Enteral Feedings...

    Hi there. Im so sorry to hear about your baby boy. I wouldn't wish this on anyone, much less a baby/child. I wasn't diagnosed until I was 26. I guess I really don't have much advice for you except to say that being in remission can take months, usually years. I would just urge you to be as...
  7. Paccha

    Buffalo hump

    Hi there. I'm sure it will. I just came off of prednisone myself. I haven'thad thepleasure of dealing with the Buffalo hump butI always suffer from moon face, weight gain, acne (which is great because I'm 35), mood swings, unwanted hair growth, etc. Some side effects take longer to go away than...
  8. Paccha

    Vaginal ulcers?!

    Hi all. I have read through a few of these posts and have noticed that a few of you ladies have this problem as well. I have been having mouth and Vaginal ulcers on and off all year long. Along with fevers, depression and anxiety, extreme fatigue, and some stomach pain and diarrhea. I have...
  9. Paccha

    Mouth / Throat Ulcers

    Hi there. I suffer from these horrible ulcers on a constant basis. I get them all over my mouth. Tongue, lips, sides of mouth and throat. Sometimes I think they are worse than the stomach pain! I wish I had some great advice on how to avoid them but unfortunately I don't. For the ones in the...
  10. Paccha

    9 mouth sores! :-(

    Thanks so much for all of your input. I actually just got home from a 6 day stint in the hospital. I was getting high fevers and no relief. And the pain is like nothing I've ever felt before. For the first few days they had me on three IV antibiotics and were searching for infection. I also had...
  11. Paccha

    9 mouth sores! :-(

    YES! my ears are hurting today, like waaay down in there . I can tell it's all connected and related. I was beginning to think I was crazy. Thank you. 2
  12. Paccha

    9 mouth sores! :-(

    Thank you all for the advice. The rinse helps my mouth, but now it seems that my throat is hurting worse than my mouth does. I can't tell if there are a bunch sores in there or there's something else going on. I have a call into my doctor. I'm hoping she will give me something for pain as well...
  13. Paccha

    9 mouth sores! :-(

    Starlight, thank you so much for your response. You are so sweet and helpful. I have actually been on Remicade for almost a year, I have found it works better than any other meds I've been on, but I've been hospitalized for a 9 day stint since starting the treatment. Its working much better now...
  14. Paccha

    9 mouth sores! :-(

    Help! I am definitely not new to crohns unfortunately, but i am new to these mouth sores. I am not flaring right now, not yet at least, but i have 9 pea sized whites sores in my mouth and I am tempted to say that they are almost as debilitating as the stomach pain I feel during a full blown...
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