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hi everyone....you all are so sweet, ive barely been on here in the last year and you are just as caring and concerned as ever..thank you all. i do miss this place and your sweetness. yes i had the surgery on june 9th and came home from the hospital the following wednesday, so a relatively short...

hi everyone, its been forever since ive been around here. things havent been great, long story short i am looking at a full colectomy now, actually was scheduled for the surgery yesterday, but at end of last week nerves hit me and ive pushed it off till june 9th. now i am just not even sure what...

hey dusty, i actually learned something really interesting today about this. i know you know ive had similar issues as Roo with food.....not wanting to eat and losing weight and so on. today i saw a naturopath (will not post about that here) and learned about what happens when our bodies are...

hey ashley....ive had a stoma for getting on two years now. havent really actively DATED dated, just due to other health issues are keeping me sortof antisocial atm but something that i found to really help me was an online dating site. i actually started that experience up to help me with some...

hey kelly.....i currently go to mt sinai for care and i highly recommend them. the organization of the institution itself is a tad...dodgy...lol but the docs are top notch and are well known for their work in IBD. just figured id give you that info. good luck hope your son gets whatever he needs.

LOLOL haha bens i love you....never fail to crack me up. maybe some calmo will clear up that sandyass issue? worth a shot....;) ive been wondering how youve been healthwise, sorry to hear its not so good. cant really say that i have any advice, im like still where you are too. stuck in this...

hey everyone i have just started on this drug. the trade name is Megace but generically it is megastrol. it is sort of strange how it is used.....its used for stimulating appetite in conditions like AIDS patients or eating disorders, and then also is a breast/uterine cancer drug? how weird is...

hey CCF...also remember that its not just that you dont feel well or sexy, there are usually legitimate physical reasons WHY your body is not having the natural desire. whatever is going on inside....being inflamed, infected, anemic, losing weight, etc etc, our bodies go into survival mode...

ohhh no no i wasnt being critical of your post or anything not at all! i misunderstood and thought that you got upset when first coming across the thread because the side effects that other people had scared you and i didnt want you to be scared of things like that, you know? but now i get that...

i hear you buddy. your situation is actually what i am fearing at the moment myself, i have an ileo but my colon still intact....but it will prob have to come out. which ok yeah if it makes me feel better, but all the extraintestinal symptoms?? what if THEY dont go away? i am lucky that my small...

can i ask what are all the meds you are on currently? complete list? and have you ever fished one of these things out of the toilet (or wherever you throw up) and examined the texture and overall characteristics of it? lol gross i know, but sometimes its very helpful. and also, i know its hard...

haha i kneel when im at home too, much easier than sitting, but in most public bathrooms and DEFINITELY porta potty situations......id rather have butt/seat contact as opposed to knee/floor. i mean drunk people go in there and their aim is not so en pointe....

just a thought....they could be stretch marks maybe? from the steroids. i have loads of them....lower back, thighs, hips, shins (yes shins), ELBOWS lol i mean seriously....and while mine dont really fit the 'bleach' description, im sure it could be likely. depending on skin tone and all that...

hey effdee.....im not so sure that anti-d's are gonna do what youre looking for. pretty sure they dont act as muscle relaxants or anything like that. ive been on prozac and wellbutrin for a while now, for a whole mish mosh of emotional things that ive had going on, and they have helped me in...

can you tell exactly what it feels like? all my fistulas have always developed the same way. there is a while when the area just hurts overall, then slowly i can feel a really firm spot, then the center of the firm spot starts to go soft, like a ring of very firm skin with a tender center, and...

agree with you blood drama, poo going thru the highly inflamed area is the cause i think. i remember getting that feeling when having a bm or needing to. the cramps would come in waves and it would be that awful sensation of like...burning cold almost....like ice water poured thru my...

hi tannersmom and welcome horribly ironic that your son and i are at almost the exact same crossroads. i had my ileo done a couple years ago and crohns is still quite active....the docs want the colon to go. they have for years and years, but just like you, my parents and i feel soooo strongly...

hi there ive never had this exact situation but ive actually talked to someone who did the whole drainage pouch deal. it sounds pretty awful, i must say. from what she said it seemed she was able to maintain her life as was usual for her, she said she wore a lot of skirts cuz they covered the...

well the area on my leg seems to have calmed a little bit, so thats relieving. but not doing so good. at all. my weight is going down steadily again, lots of cramps and time spent on the toilet trying to crap out mucous, on and off D and throwing up, and my PG on my stomach is def taking a...

haha i call it either mucousing or mucous poo. "i have to mucous!!" hahahah i dont really say it out loud though. when i have a mucous flood before i can make it to the bathroom i still call that crapping myself.