• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. AJC - Australia

    Are you underweight + fatigued? This could help

    I am 39 male (5foot 9) and have had crohns for over 20 years now….three surgeries and also the gallbladder was taken out. Recently I have been looking into what I can do to put on weight (i havent been over 60kg since I have had crohns) and also looking at fatigue and what I can do about it. I...
  2. AJC - Australia

    Picking your nose - good bacteria?

    I often wonder why i got crohns, but my brother with the same genetics and upbringing did not. I can think of nothing we did differently….except, he picks his nose and eats it! Sound gross? Well, what if everyone who has crohns thinks the same? What if eating your bogeys is actually good for...
  3. AJC - Australia

    For crohns people over the age of 30

    I found a new doctor recently who is brilliant. A few things he said I need to share with you. 1) If you havent had your bone density tested, get it done. Many, if not most people with bad crohns get bone loss and there are things you can do to slow it down. 2) If you ever took cortisone...
  4. AJC - Australia

    Fatigue + Ritalin or Adderall

    Has anyone gone for Ritalin or Adderall to help the fatigue? I am so tired of having no energy. I eat well, sleep well, exercise - but just have no get up and go….i need something. Please help
  5. AJC - Australia

    Article written about Crohn's & stoma

    http://mrescombe.blogspot.com.au This is written by a good friend who has Crohns. He now has a bag. Very very well written and good advice for anyone with Crohn's.
  6. AJC - Australia

    Gallbladder removed now have worse digestion. NEED ADVICE

    Can anyone offer advice here. I have had 3 x resections and now been on infliximab for 8 years and it works for me….I was fine until recently when the gallbladder had to be removed. Since then the D has gone from 2-3 times in the morning to 5-6 times and it is really wearing me down. I am not...
  7. AJC - Australia

    Do you live in the city or country?

    There was an interesting thing on the radio in Australia today talking about how living with more trees around you shows a significant correlation to getting diseases or not. The study of over 250, 000 people showed the more trees the better the health. It also showed incresed health with...
  8. AJC - Australia

    What are you GRATEFUL for?

    Yeah i know, you feel like crap and are not grateful for anything because your life is one giat drag. … we all 'get' that. We all go through that - often. BUT When you have that feeling of gratitude and being grateful - for me, it makes my tummy feel good. As opposed to sitting here...
  9. AJC - Australia

    Who to talk to about Crohns?

    No one in your family will understand, unless they too have Crohns. Doctors try to understand, but not many people have a nice understanding doctor. You dont want to talk to your wife/husband about it, it is disgusting. You dont want to talk to your best friends, they wont understand. SO, who...
  10. AJC - Australia

    Having 'the shits'

    Most people i have met with crohns, myself included, are pretty grumpy about the world. Be this as it may, I have found that it makes me feel better to 'let it out' when something upsets me…..when i was younger I used to internalise it…these days, in my 30s, i let it out…..i dont let it fester...
  11. AJC - Australia

    Remicade and swollen joints

    Hi everyone. I have been on Remicade for 8 years…it has been wonderful, took me from the depths of crohns back to somewhat normal health. Recently i have had a sore elbow, but i havent banged it on anything. I had a 'bursa' and had it x-rayed, but now several months later it almost feels like...
  12. AJC - Australia

    Crohns people - intelligence test

    I have heard from many doctors that 'most people with crohns appear to be intelligent, above average IQ'. Were you above average at school?
  13. AJC - Australia

    New DNA modifying drug

    Not sure what to think? http://www.dddmag.com/news/2014/04/celgene-snags-new-crohns-disease-drug With all that money they are talking about, it seems it is just another drug you will have to take for the rest of your life… With Crohns making approx $3 BILLION per annum, finding a cure is...
  14. AJC - Australia

    T Cell VACCINE for Crohns

    Dr John Hermon-Taylor (England) has been working for 30+ years on the theory that Crohn's Disease is caused by an infectious agent…a bacteria. Myco Bacterium Paratuberculosis. (or MAP) He has developed a test which can test patients for the bacteria and he has gone on to develop a t-cell...
  15. AJC - Australia

    Infliximab - Remicade in England

    Is anyone here from England? I currently live in Australia and want to relocate to England. Largest obstacle is REMICADE infusions. I have them every 8 weeks and have done for 6 years….the drug is wonderful and has made me well again! I am asking, how long can you take Remicade for in the UK...
  16. AJC - Australia

    Drugs and alcohol

    Abusing your body with drugs and alohol is not unusual for someone suffering with Crohns - or a disease…whY? Your body is causing you pain - why not give it some back? I felt like this for years……….years I tell you. Years of late nights, no food, plenty of spliffs and alcohol > shitty food i...
  17. AJC - Australia

    Crohns - stress ---> changing the way you respond

    Coming to terms with having crohns disease is a long process. Part of that process involves acknowledging that you may have faults and flaws in your own personality/behaviour and lifestyle. One of the faults i know i have is getting stressy about things...it is a life lesson i needed to...
  18. AJC - Australia

    does Emotional Stress set your crohns off?

    I can cope with physical stress, like shovelling a wheelbarrow of soil or moving house....but emotional stress just kills me. Are you like that? What sort of stress sets you off?
  19. AJC - Australia

    Mornings - how is your mouth/tongue

    Several years ago i read this book and realised that in some cultures adults keep a 'spit bucket' by their bed. When i wake in the morning these days i scrape my tongue with my teeth and spit it out. Probably 5 scrapes will do it. I rekon the stuff that comes off and out of the mouth would kill...
  20. AJC - Australia

    Remicade - sinus problem

    Hey does anyone else get conjested after having Remicade? I have developed a very very mild sinus problem after being on remicade for 5 years. The only other side effect i get is sore muscles (mostly in my legs). Has anyone else suffered with sinus issues? I sneeze pretty much everyday a few...
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