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I was on Entocort for 3 months (3 pills a day for 1 month, then 2 for a month, then 1), together with Pentasa (for 6 + months). I definitely saw an improvement in my symptoms actually have had lots of completely normal days! But now that I stopped (about 1.5 weeks ago) I think I'm starting to...

I've had a good experience with Entocort. No real side effects - although I did have some headaches and dizziness to start. Not sure if it was due to the Entocort though. My symptoms have almost gone away at this point. It's the "almost" that has me concerned about whether there will be a...

I have been taking Entocort for almost 3 months. Started at 3 pills a day, now down to 1 a day. I have also been taking Pentasa for about 6 months (this didn't seem to help things at all). With the entocort my symptoms have improved significantly (I would say that I feel 97% better). But my GI...

I had lots of ear infections as kid. I still do with lots of ear pain and I'm definitely not a kid anymore!

I just had a CT scan a couple of weeks ago that came back normal. My GI is still pretty convinced that I have crohns.

I'm in Ontario, so my GI isn't concerned about getting paid. His concern about insurance was for me - life insurance, private medical insurance etc. He said that once I'm diagnosed I will always have problems getting new insurance because I would have to disclose the crohn's and would likely...

I had an appointment with my GI yesterday. I don't have the official diagnosis of crohn's yet. I just had a CT scan and got the results yesterday - nothing new - basically normal. So there is no real objective evidence of crohn's (colonscopy 5 months ago showed inflation and an ulcer in the...

After you eat something, how quickly do you know that going to cause you problems? I'm still trying to figure what, if any, food bother me. And I don't know if it's the food I just ate dinner, or what I ate for lunch or breakfast!

I can really relate to your comments. I'm not really the kind of person that shares things easily. I guess I don't like people to see that I'm vunerable in any way. I don't want anyone to feel sorry for me. I'm pretty new to this but most of the time I feel like I have to fight this thing and...

Thanks for the advice everyone. I saw my GI doc yesterday. He said that although he couldn't confirm crohn's based colonoscopy, that "clinically" it's looking like that's what it is. He felt that it was time to add Entocort with the Pentasa to see if that would improve my symptoms. He's...

Hi CJ, when I had the small bowel follow through, I warned them that I didn't think it would take long. I was in and out of there in under an hour! Things have slowed down a bit for me since then, so I think the test would take longer now.

I haven't booked my next appointment yet but the GI doc said to try the Pentasa for a couple of months and see if it would work. If things got worse I should go back to see him and he would repeat the colonoscopy and small bowel follow through. He hasn't officially confirmed the crohn's...

I'm pretty new to the chrons thing and I'm trying to figure out what "normal" for me now and when I should be concerned. I think I've been in a flare up for about a year - that's how long it took to see the various doctors and have the various tests and get the diagnosis. I've been taking...

I've had sinus problems all my life, with mild stomach issues. Have had more significant and persistent stomach problems for the last 12 months and was just diagnosed with crohn's. It's interesting to think that these things might be linked. I saw something on Oprah (Dr Oz) about 1.5 yrs...