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Crohn's Disease Forum

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  1. therainbowrevolts

    Undiagnosed Club Support Group

    Ha! I always think "this one will be a short one..." and it never is :| Ahh, I know I should - I don't take it daily or anything though, I don't notice things get particularly worse after I take it, and I don't have a primary care Dr and have never been prescribed meds specifically for my...
  2. therainbowrevolts

    Undiagnosed Club Support Group

    Awww, thank you! I would've been so bored this past year without goals/deadlines/etc, so joining swaps/doing things outside of my comfort zone/pushing myself to learn a lot have really been a huge saving grace! I've heard t-shirt quilts are kind of a PITA to make haha, I've got one I want to...
  3. therainbowrevolts

    Undiagnosed Club Support Group

    Honestly - this is now my approach. I went into the ER and to my old Dr last year, and even to a GI last year, and I said, here's what my symptoms are. Here's how long they've lasted. Here's what's helped so far. All I got in response is, "you don't have Crohns, Crohns is rare, your tests show...
  4. therainbowrevolts

    Undiagnosed Club Support Group

    Wow, hello everyone - lots of conversation while I've been missing! I was actually planning on asking who here was crafty - it's literally the only thing that's kept my sanity for the past year. I have a blog (therainbowrevolts.blogspot.com) and I'm really crafty-active on IG under the same...
  5. therainbowrevolts

    Undiagnosed Club Support Group

    Cat - Haha! Yup! You couldn't pay me to do a cleanse! I notice that if I switch to more liquids in my diet, most of my pain goes away, so juicing in that sense is fine - but oh gosh I worked with someone who was all into juice cleanses and I could not even handle it. She was really young too...
  6. therainbowrevolts

    Undiagnosed Club Support Group

    Cat - ahahahaha oh man. French flour! That's a new one!! One of the reasons I'm pretty sure I'm not celiac is because not everything with gluten gives me pain or anything, and it feels like when I'm not eating a lot, that sort of reaction would be really noticeable. Aughhh do not understand the...
  7. therainbowrevolts

    Undiagnosed Club Support Group

    Cat - I'll have to go check out your gym thread! I really should post a "my story" thread so I can just reference that haha; but for me I started losing a lot of energy around...Feb of 2012? And then July 2012 is when my appetite disappeared, D started, vomiting a lot started etc. Around May...
  8. therainbowrevolts

    Undiagnosed Club Support Group

    This might be kind of long - sorry for not updating sooner, it's been rough! I did end up going into the ER but they were incredibly busy...waited for 3 hours and there were still 8 people ahead of me, and I was starting to tolerate water again, so I went home to rest and the rest of the...
  9. therainbowrevolts

    Undiagnosed Club Support Group

    I hope I'm not posting too much ;;; Thanks for all the advice, I called and they told me to just take in as much fluid as possible, so I have been. Just started my suprep and it is awful ugh. What's with the throat taste?? Anyway, I really am having trouble intaking all these liquids - its been...
  10. therainbowrevolts

    Undiagnosed Club Support Group

    Thank you so so much for this! My 12 hours passed about an hour ago and I definitely feel much better (cramps are as gone as they ever are, holding down liquids, no nausea...heartrate is closer to normal!), so it's a bit too late to go in - I was about to, though, right before I did my first...
  11. therainbowrevolts

    Undiagnosed Club Support Group

    Going thrugh my first prep now :c Colonoscopy on Thurs morning. Take a bottle of magnesium citrate, they said. You'll be fine, they said :c I've been a clammy, cramping, mental fog mess since I took that stuff. My husband thinks that the full 10 oz was too much for me since I've been eating next...
  12. therainbowrevolts

    New kind of pain...is it common?

    It's interesting you mention that...one of the things that happens to me all the time is if I sit upright or stand for too long, I get a cramping pain right around my stomach (seems to be in my ab muscles) that starts fairly mild but ends up getting more and more severe until I can lay down...
  13. therainbowrevolts

    Undiagnosed Club Support Group

    Thank you, mccindy and lsgs! I know rationally that getting diagnosed can only be a good thing with the everyday pain I'm going through, I mean, I really can't get the help I need without it. Emotionally, it's still hard to deal with. My husband keeps telling me the same thing though, I'm glad...
  14. therainbowrevolts

    Undiagnosed Club Support Group

    I finally actually have progress to report, for the first time since...gosh, last December?? My husband & I don't have insurance so we were at the mercy of our local county health system, which...well, they wanted $2500 for a colonoscopy (that took me 6 months to convince the Dr's I needed). So...
  15. therainbowrevolts

    Can Crohn's Disease be found during a colonoscopy when the person is coming off of a flare?

    I've been to the ER several times when my symptoms have been the most extreme and they tell me every time that there's nothing they can do for me (just an IV with pain meds or anti-nausea or whatever; usually they do bloodwork that comes back normal or maybe an xray that comes back fine. I had...
  16. therainbowrevolts

    Undiagnosed Club Support Group

    Hello c: I've been to this forum a lot over the past year since my symptoms started; it seems like the one place on the internet I keep returning to when I feel my lowest, when my pain is the worst, or when I feel the most alone. Especially the Undiagnosed Club♥ It's hard for me to reach out to...
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