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Hello, I was wondering if any of you had growth issues with your children. My son is 13 and only in the 3rd percentile for height and weight. His full height potential should be 5'8", but as of now he is on track to be only 5'2". I am happy to report that his Crohn's seems to be well managed at...

Hello All, My son is finally nearing the end of his two month wait after getting his varicella shot and will be starting Methotrexate. Is a TB test necessary before starting Methotrexate? Thanks for any info. A belated Happy New Year to everyone!

Has anyone had to give their child a live vaccine before starting IBD meds? How did you handle that, timing wise? My son needs the MMR. Thanks for any feedback.

Hi All: I was just wondering if anyone had tips for giving their child Methotrexate shots. We do have numbing cream and I know about pinching the area, but wanted any (and all) tips. My son is extremely afraid of needles! And very, very, skinny. Thanks!!

Happy Saturday! I was just wondering about anyone's experience with methotrexate shots and his or her child. My son's doc is recommending this rather than Remicade to start. My son is very afraid of shots (of course) but infusions are no bargain, either, so I have to consider this. I like...

I was wondering about the timing of blood work with Remicade infusions. My son is very needle averse so I wanted to know if labs were done at the time of infusion and whether they could use one stick for both the labs and infusions. I have a feeling they are on opposite tracks, though. If so...

When I brought my son in for a second opinion, this doctor mentioned that although my son had no blood markers for Celiac Disease, he had "focal villus flattening" in his duodenum, which could be indicative of Celiac. Has anyone else experienced this? Has going gluten free helped with this or...

Hi Dusty, Yes, he is responding well to the Prednisone. No, he has not yet started the 6-MP. Given the risks of 6-MP prior to or with Remicade, it is very tempting to have him forgo the 6-MP. The second doctor did say she would not add 6-MP once he started Remicade. She would try another...

Please let me know what you hear. The GI doctor on call didn't see any possible connection to meds or Crohn's. I took my son to his pediatrician and she said it looked like eczema and to try cortisone cream. I did have her do a strep test because the rash looked like a scarlet fever rash, but it...

So my son is tapering off Prednisone as he gets ready to begin other treatment and he just came to me with an itchy red rash on his arms and legs. No other meds have changed so I'm wondering if anyone has experienced this? I gave him Benadryl (and have a call in to the GI), but it's really...

Hello all-- I took my son (12, dx with Crohn's in March) for a second opinion and this doctor is suggesting that rather than 6-MP we move straight to Remicade as he tapers off Prednisone. She is concerned that given his age, extent of disease, and extremely low height and weight (he is 4'5" and...

Hi Jane, So sorry for what you are going through. I appreciate your taking the time to reply and you're right, life comes with risks in all forms. I am doing my best to move forward with the sucky hand we've been dealt! I wish you all the best with your husband and as your son starts AZA. Jen

Thanks so much for all the feedback. I still feel like I've been run over by a truck, but am trying to move forward without letting my fears consume me. I have decided to take my son for a hem/onc consult to see if he is at any more risk than others given my health issues. And I have set up a...

Hello: I was wondering if anyone had some initial anxiety about his or her child starting 6-MP. My son was diagnosed with ileocolitis in early March and has been on Prednisone and Flagyl since the 15th, with great improvement symptom-wise and on his blood work. The doctor wants to start him on...

Thanks, Dusty. My son has Ileal Cronh's, too, so that's good to know. There's a steep learning curve for all this, for sure! And I have an immune disorder (common variable immune deficiency) and even though my son does not have that disease--thank goodness!--I am ever vigilant.

:hug:Another single mom here! I've always raised my son on my own and when he was diagnosed with autism at three, I thought I was overloaded. Now add Crohn's (diagnosed in March '14) and we've got quite the stressed-out mommy. I do have friends and family around, which helps a lot, but at the...

This 504 plan is awesome! My son already has an IEP because of his autism, but this is a great explanation of his new medical needs and I will be sure to have it added. One blessing is that his school has been very understanding and accommodating about all this. All credit to my son, who's a...

Hello (again): My 12-year-old-son, diagnosed with Crohn's earlier this month, has been on Prednisone for just over a week and has already come down with strep throat. On the advice of his pediatrician he hasn't been in school since his diagnosis because of his severe weight loss and having to...

He has Crohn's in his ileum and colon, so I don't think it's that. Very puzzling. I am taking him to the pediatrician today. Hopefully, I'll get some answers there. My son is so tired of doctors already! Thanks!

My newly diagnosed son has been on 40 mg of Prednisone for one week. For the past day or so he keeps saying he feels like he has too much saliva in his mouth and reports that he is having a hard time swallowing. I don't see that he is actually having difficulty swallowing and there are no signs...