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This whole thing with having an immunosuppressed kid is so new to me. I have always been a freak about hand washing. But Nick has not been back to school since this all started in February, so I'm relieved about not having to worry about the germs from school, although I know it's just...

Today is the day for our 2nd Remicade infusion! I never thought I would be this ready for it, but Nick spent all weekend not feeling well. He threw up once yesterday and started complaining of right knee pain. I'm hoping that Remicade does it's magic. And SOON....

Hearty

Fry

Sending positive thoughts and strength your way to try to be patient while waiting for results. Waiting is one of the hardest things to do as a parent when it concerns our babies health. Please keep us posted!!

Thanks everyone for all of the encouragement!! He woke up today saying that his belly button was still sore and that while he's not hurting, that he just doesn't feel as good as he did "before". I'm beginning to wonder if maybe the Remicade is wearing off? Can it do that?? I remember the day...

Thanks so much for the welcome! I have a question for you two. Since it has been over 2 weeks from the first Remicade infusion, (it will be late by 4 days), will that affect the effectiveness? I read on here how important it is to stay on time with the Remicade schedule and he has been doing so...

Hello everyone! Our journey began one morning when my 16 yr old son Nick woke up for school complaining about pain that was on his right side, right next to his belly button. He said his pain was about a 6 on a scale of 1 to 10. He has a high pain tolerance so I knew my baby was hurting. So...