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Crohn's Disease Forum

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  1. M

    Thanksgiving on 100% Enteral Diet

    To Girlscout, son, and all of you dealing with Thanksgiving and EEN. May God bless you all. I was on EEN for 3 Thanksgivings 35 years ago. It was Vivonex for me and turkey and allthe fixings for grandparents(all4 0f them), parents and brothers and sisters. Thursday my family and me will...
  2. M

    Years w Crohn's & Current Age????

    45 years. 63 now. Miles
  3. M

    How long until passing gas after surgery?

    If you can walk, even with assistance, please do it. When I had my first resection many years ago, the head nurse on my floor would not leave my room until I walked for the first time Two or three days later, my bowel began to respond. You have my sympathy for the gas you are experiencing...
  4. M

    How long until passing gas after surgery?

    When your doctor puts his stethoscope to your stomach does he hear bowel sounds? If so that's a good sign. If not, it was explained to me that your bowel is not awake ie. ileus. Hope you get relief soon. Miles
  5. M

    Annual referral for specialist appointments with a LIFE LONG disease..

    Haven't seen a GP for 40+ years. It's personal for me as my GP of 40 years ago misdiagnosed my Crohn's for 3 years and would not refer me to a GI until he was threatened with a law suit. I am not familiar with your Country's medical system and practices. I hope you get answers and relief...
  6. M

    Humira and peripheral neuropathy

    My GI says my problems are a result of active disease not Humira. Then why do I no longer exhibit the symptoms of active disease? My GI says that's because of Humira ! He is slow to fault Humira for anything. I think some doctors worship at the altars of pills, medications and shots. 100...
  7. M

    Humira and peripheral neuropathy

    Newton's 3rd Law: "For every action there is an equal and opposite reaction." In my experience, Humira is no exception. I believe Humira has caused my light headedness, unsteadiness (sometimes I am afraid to drive), and my fatigue. Crohn's flares are gone though. Good trade? With the...
  8. M

    Imuran/Azathioprine/6-MP Support Group

    Layla, I too am taking 100 mg AZA per day. I am dizzy most of the time and sometimes do not drive because of the light headed feeling. Also I'm taking Humira injections weekly. Could this be a side affect of the AZA?
  9. M

    Fistula or hemorrhoids

    I've only had one, and yes they are painful. Mine was drained under general anesthesia and packed with gauze until the draining subsided. Try your best to keep the area clean until the wound heals. I used regular warm sitz baths with small amount of Epsom salt. There may be a better solution...
  10. M

    6mp ? Humira ? Confused. Terrified.

    I understand your hesitancy to AZA with the Humira. I have been on Humira (40 per week) and AZA (100 mg per day) since 6-1-2014. The combination has just begun to work as of 2 weeks ago. Very little pain and noticeable drop in BM per day. I am 63 years old and have had CD since I was 19...
  11. M

    Probiotics. Do you take them? Which ones work?

    Make my own yogurt 1/2 gallon at a time. Mix with fruit or honey. Calms my digestive tract. Miles
  12. M

    What do YOU do in there?

    Read the Steve Jobs biography. Ha Ha. Cheers, Miles
  13. M

    Angry with insurance

    All, The squeaky wheel gets the grease. If you in the US need help and your insurance, doctor, hospital, or anyone else will not provide it, scream like hell and don't let up. I can't speak to those of you in the UK or Canada. I don't know your system. The current insurance program(s)...
  14. M

    Humira Club Support Group

    Nancy, GI started me on Humira 2 times per month. +60 mg of Prednisone (I taper out next week), +100mg per day of AZA. 6 weeks into Humira injections, GI increased Humira to 1 time per week. I am 63 years old so increasing Humira to once a week was a nobrainer for me. Had I been a much...
  15. M

    I'm so scared and depressed talked to surgeon

    Way to go Cleuger! Despite your physical condition, keep pressing until you get the answers you need. I am indeed sorry that you have to go the surgery route, but you just may come out on the sunny side of all the darkness you are experiencing now. So much of our health, I believe, is...
  16. M

    I'm so scared and depressed talked to surgeon

    You can do it Cindy! Whatever it takes you seem the type not to give up. Please let all of us know how you are getting along. I'm expecting something good from you. Good evening, Miles
  17. M

    I'm so scared and depressed talked to surgeon

    Cleuger, You are either working (able to work) or disabled in the eyes of Social Security. You must be ruled disabled, receive benefits from Social Security, and then you can return to work on an approval basis from Social Security on a trial basis without losing benefits. An attorney is not...
  18. M

    I'm so scared and depressed talked to surgeon

    Cindy, Apply as soon as you can for SSDI. Social Security Disability. It will take a minimum of 5 months for ruling on your case. You can hire an attorney familiar with SSDI and they will take a percentage of your award. Social Security does have a program for return to work without losing...
  19. M

    I'm so scared and depressed talked to surgeon

    Cleuger. You will qualify for "obamacare" when you lose current coverage. Losing current coverage is a qualifying event and allows you to register and qualify for Obamacare immediately. As to your soon ex. I would sue his a-- off particularly to protect your son. ask friends, relatives...
  20. M

    Doomsday Treatment options

    Hello, Sid. "Doomsday?" Should doomsday happen, IBD and it's treatment will be the least of our worries. Regards, Miles
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