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(((((((hugs))))))) I have been on infliximab/remicade for 5 years now :) Happy to answer any q's you may have if I can! Lucy x

I'm in the UK and have been on infliximab nearly 5 years now. Basically the Dr's have to apply to the 'primary care trust' of that district as infliximab is expensive. The Dr needs to get evidence that the crohns is active, moderate/severe and other medication options have been exhausted. They...

Thanks! (secret confession: have been to this forum before just can't remember password lol!) I have a GI appointment on Tuesday, will discuss possibilities of coming off infliximab then. It's a big decision but hopefully I will be able to find other, safer ways of managing this.

It can be weeks apparently. I rang the infusion centre and they said it should be fine :) And I'm seeing my GI next Tuesday anyway so I will bring it up with them too.

thanks for reply :) My infliximab infusion is due on friday so I will be talking to my IBD nurse/Dr before hand to make sure it's still okay. The thing about these worms are they are super contagious so everyone in the house has to be treated as theres a 75% chance you'll get them if someone...

2006 - My symptoms started just after my 13th birthday. At first I was really embarrassed so tried to keep it a secret but then then my mum noticed and took me to my GP, who did a blood test (my first one that I can remember! I freaked out) which showed high inflammatory markers. By this point...

In the last month or so I've had a cancer scare, of a particular type of cancer associated with infliximab (still not clear of that one) and also my niece recently moved in to my house and brought pinworms into the house, which are highly contagious and difficult to irradiate and I'm worried...

Ooops turns out they are called 'pinworm' in the US but 'threadworm' here in the UK... threadworm in the US seems to be a different type. That's messed up my googling haha

Hi all, sorry this is a bit of a strange first post, anywhere here goes... My niece recently moved in to my house, turns out she has worms (threadworm) that recently came back. So I do some googling, as you do, and found out that if you're immonocompromised and get threadworm there is a risk...