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I'm just needing to vent. Active Crohn's since 91, resectioning in 2001, was in remission until recently. I'm in so much pain and all I keep hearing is "I don't want to put you on narcotics". Allergic to remicade and humira, basically nothing works. I've had dr put me on suboxone (which I read...

Sounds very Crohn's to me. The inflammation and ulceration as well as it's location in the ileum.

Sorry like was supposed to say a steroid LIKE prednisone. Your dr may be against it but it is still one of the most popular meds for Crohn's. It helps with pain and inflammation. I would try to find another dr if you can. Can you maybe see a pain Management dr in the meantime?

Definitely not blood

Have you never been on a steroid lime prednisone?

I had the surgery in 2000, and it was the best thing that ever happened to me. I was in remission for 14 years after that! I had a decent scar so that sucked but it was low below bikini line. Don't worry just make sure you've got lots of pain meds, and family or friends to help you after. They...

As far as the weight gain, stress causes weight loss, Crohn's causes a lot of weight loss and of your not eating- I can imagine what's going on. Try to relax, meditate at night I know it sounds silly, for us on getting your pain under control first, because when your debilitated it makes...

Call your dr and get a prescription for Vicodin or something with Crohn's you need to have something! Also try to find a good pain management dr. Why didn't your dr give you anything?

I had the pill cam test years ago and what they told me was that it did help with diagnosis but was one piece of the puzzle. It can show ulceration etc but will not show the degree of the thickening of the intestine wall, unless there is extreme blockage there. It took an additional upper GI...

Hi michael. Sorry to hear you have joined our little club here. I've had Crohn's for 18 years so I know what you are going thru. If they have only done colonoscopys I would ask them to do a endoscopy while your under so they can see everything. As far as your pain on the left side it could be...

Try foods high in fat to help you gain. Good thing about things like butter is they break down in the stomach so won't irritate the small bowel. Pasta is great too. Carbs and fats- works for me. Good luck. Stay strong